WILLA ✨ she’s got fibromyalgia
Region: GB
Thursday 03 July 2025 22:13:28 GMT
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TotallySara :
I understand, been struggling for months with constant fatigue, migraines and brain fog. I got diagnosed with sleep apnea, which I'm thankful there's an actual diagnosis now, start a CPAP soon, which should help. I wish you all the best 💖
2025-07-04 20:51:12
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WILLA ✨ she’s got fibromyalgia :
I think the most frustrating thing is not knowing what causes it or what I can do to make it better. Anyone else feel like this?
2025-07-03 22:14:18
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spicy little cabbage :
it’s an infuriating thing 🧡 you’ve got this, let yourself rest - workouts and a to do list are a really high expectation to be setting yourself, even outside of a flare up - it can be scary to accept that you just can’t manage things for a while, but pushing to do these things will only exhaust you more - let yourself mend, let yourself sleep and breathe 🧡 you’ve got this
2025-07-03 23:12:03
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Fay Elizabeth :
Absolutely, I have RA and ME, and have been having a big pain flare from RA which has caused the worst ME crash I’ve had in years. I’m so sorry you’re going through this too, and you’re not alone xx
2025-07-03 22:35:56
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derkgirl :
I can totally relate as I have MS. I found the spoon theory helpful and my doc put me on narcolepsy meds.
2025-09-08 21:57:54
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lynnesmith79 :
Omg this is exactly how I feel, this is the longest flare up I’ve had but feel so guilty and not sure how I keep going.
2025-08-29 08:08:52
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Jenn Daly :
Just got a little out of a flare. It’s an awful place 😞
2025-08-24 07:04:06
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Emma :
The honesty about flare ups is so important 💜 Tracking energy levels helped me finally see patterns and pace better. Wishing you brighter days ahead
2026-01-06 20:51:19
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Non_g🌻 :
Me too 😭 it's almost 4 months flares
2025-08-24 12:08:13
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✨Erika’s Resonance✨ :
You did succeed today, you started a new day and tomorrow you will succeed again. Give yourself the power of grace my friend. We can do this together
2025-07-05 06:46:39
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Lilly :
i feel this so much... i have ME and I feel like I've had a flare up going on 2 years now 😭😭 like I'm constantly behind on my energy reserves, like I'm barely keeping my head above water..
2025-07-03 23:06:58
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sandra h :
I recognise myself in this so much ❤
2025-07-29 10:51:26
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user7598218550882 :
Me too
2025-07-04 12:00:12
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Malika London :
I’m in the same boat. I’m with ya.
2025-12-25 05:27:21
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Beza :
I'm tired really I'm stressed 😥😫 I feel like I'm losing my life 😭😭
2026-03-10 16:35:59
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Feral and Chaotic✨ :
Long COVID here. I totally getcha. and I know this isn't what you want to hear, but the only way this flare up is going to go away is by resting. Do nice things like a colouring book or crochet, but prioritise rest. it sucks. man I totally getcha. I've been housebound for 9months. but you have to remember to look after yourself I hope the flare eases up soon xxx
2025-07-04 15:44:03
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Bem :
Be careful with your baseline love, one final push too hard and I put myself into the severe category. I’ve been here now for 925+ days ❤️🩹 prioritise pacing as infuriating as it is it’s all we have until ME gets biomedical investment
2025-07-05 21:55:27
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Thegingergreenhouse :
Same girl, we can do it, you got this
2025-08-07 16:20:55
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Gray 📚🧶🫖🍂 :
This is me going on for a few months but really bad for the past two. I feel like my life has ended.
2025-07-31 20:36:14
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emmabh93 :
Really feeling this lovely! I’m a single mum to two and I’m just chronically so exhausted and flaring up so often lately (eldest is SEN- so my nervous system is also shot due to stress and the weight of everything) xx
2025-07-04 08:44:32
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Common Jay :
The only way out is through. And you *will* get through. I promise. ❤️
2025-07-05 11:16:16
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Karen :
My MIL suffers so much
2025-08-27 16:09:28
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beeecolquittart :
Much love and a nice cool pillow to keep close ❤️
2025-08-07 12:28:57
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keepshiningyougotthis :
Hugs🤗🤗🤗Unfortunately,I can relate 😭😭😭CRPS warrior here 🔥🔥🔥
2025-07-04 18:47:15
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Ms Ayah :
🫂 My last bad flare was 3.5 months, you are doing so well and are stronger than you think. Hardest thing to get through. It's not your fault xxx
2025-07-04 19:23:51
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