WILLA ✨ fibromyalgia egg
Region: GB
Saturday 05 July 2025 18:41:18 GMT
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JadeMansell :
Feels like you are being drowned
2026-09-05 07:38:56
2
Emma Marcus :
i've been like this for a year
2025-07-05 23:25:11
6
Olivia :
I’m experiencing this rn 😭 I don’t have any advice but you’re not alone girlie
2025-07-05 18:49:30
4
ava🪽🍂 :
Update ?
2026-07-28 03:04:41
0
chelsea undiagnosed journey :
Me me me ! It’s frustrating
2025-07-07 16:08:10
2
April Anderson :
yes, the air hunger is awful
2025-07-07 19:53:33
0
spicy little cabbage :
‘normal’ thing for POTS apparently - i used to think it meant i was really unfit 🙄 only trick is to just slow everything down, remind myself that i’m getting enough oxygen even if the breaths don’t feel enough, and then distract - it’s not much but it’s the best i’ve got!
2025-07-05 23:26:36
2
Rhodey :
electrolytes
2025-07-07 21:52:36
0
C A R L Y :
I always have this too!
2025-07-06 00:00:39
1
WILLA ✨ fibromyalgia egg :
Often it’s the unknown or the things we don’t understand that feel the scariest. Have you ever had a symptom like this? 💜
2025-07-05 18:42:49
1
daniel :
I've been like this for almost 2 years
2025-10-31 17:03:29
2
MsSznur :
I have this most of the time. I am not diagnosed with POTS, just recently I found out what it is. Don't recommend it. When I forget to breathe I feel like half dying.
2025-07-05 20:23:50
4
Kat Sato :
Mine started with the breathing after covid as well. They have told me many things over the last year. Please see a pulmonologist and neurologist. work up for cns breathing disorders and muscular ones. initially they said I had asthma, then myopericarditis, then pots, then autoimmune dysautonomia, now I'm at my lowest and they're looking at muscular disorders. I'm so sorry you're experiencing this and hope you get answers soon. it is scary. but don't wait for answers and accept pots, ask for a 6 minute walk test or try yourself. ask for an echo, a pft, EMG/NCS. I know before this round of I was extra exhausted it was worse. also no back or left side sleeping. and check your meds, especially allergy meds. and nutrition panel especially vitamin d, iron study (three tests) copper, selenium, don't get too hot or too cold (ac triggers my vasospams making breathing worse)
2025-07-06 19:08:42
2
Emily💗🧂🎀 :
This happens to me too!
2025-07-19 08:51:28
1
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