@mmadrigallsresearch: Why the days before your period can feel like a breakdown if you have EDS. Hormones, fascia, inflammation, and your nervous system all collide and artificial hormones can make it worse. #ehlersdanlos #fascia #frequency #chronicillness #period #hormones
So perimenopause + premenstrual + EDS + POTS = 🤪😢☹️😔 Awesome! 😩 Thanks for helping us!!
2025-07-07 22:40:46
88
Kristen Dolan :
I’m going back on birth control because I can’t take the fluctuations anymore 😢
2025-07-08 02:18:53
4
nicolameikle0 :
Mine was histamine - too much oestrogen not enough progesterone
2025-07-08 10:40:24
31
Samantha Mannix :
so what happens when you have hEDS, DIE, pots, mcas? I feel like im dying lol and when my period comes its a week of hell prior, week of hell during, and then a week of recovery. almost losing my entire month... every month. 🤣
2025-07-08 12:14:24
30
Khecht :
Generally speaking does an IUD help or exacerbate this?
2025-07-08 19:19:03
1
💙 :
Now throw in PCOS and POTS for complete chaos 😭
2025-07-08 13:56:57
32
✨__Meez Cheese__✨ :
The most important thing people like us can do is to cleanse the liver!! Estrogen, histamine, and the liver all work in one big cycle together and most of us who are eating the American diet do not have healthy livers.
2025-07-08 23:51:36
6
mcknightsloane :
Anyone else with eds have a very heavy/ painful period? Is this because of the collagen deficiency?
2025-08-04 23:14:35
0
KLynn :
I had to have a full hysterectomy at 42. I had suffered with severe symptoms for years.
2025-07-08 20:36:54
1
☀︎☽ kosmik_vvarrior ☾ ☀︎ :
so EDS is basically the umbrella that all my comorbidities fall under... got it lol. I just got diagnosed with pots. waiting on a formal diagnosis for eds but 99% sure I have it.
2025-07-11 14:32:12
29
Melanie :
Or.. all the things when you have hEDS, PCOS, PMDD, MCAS and POTS 😑
2025-07-08 21:17:39
1
PonderingLife :
I’ve been diagnosed with PMDD. I lose my mind before my period. It is hell.
2025-07-08 00:50:02
13
Lindsay Nalley :
I have hEDS, Pots and Lipedema. This makes so much sense!
2025-07-10 11:28:59
1
Qarla :
it's PMDD not PPMD
2025-07-08 02:27:37
7
Stella Heliconia 🇵🇸♿️🌈🍁 :
I’m 43. My periods are irregular. I feel like I’m falling apart lately and I know this is at least partly the problem
2025-07-07 23:12:19
7
💜bailee_storms💜 :
Pmdd and eds and mcas and pots is so crazy
2025-07-09 02:01:10
3
Amity Alize :
oh. so I'm not crazy that it's hell the week before
2025-07-08 12:16:31
7
Living Signal Research :
There have been a few that have asked why I haven’t deleted this video due to my mess up on the initials of this condition. Because I’m human! And I make mistakes. This condition throws our brain everywhere and sometimes that happens!
2025-07-09 17:26:27
11
Cc :
What can you do about it?
2025-07-09 04:08:58
1
_x13jessthemess :
I really think I have elder danlos this makes soo much sense for me :( i literally feel dead I can’t function and im so beyond tired. My pain shoots through the roof and I just wanna give up.. idk how to get rest for elder danlos though cuz i have minimal symptoms but i still notice them and i have ADHD so I know sometimes they go hand in hand so im not even sure what to tell my doc :/
2025-07-10 14:07:30
1
AWESOME Britt's O-Pals :
What about cyclical vomiting? I possibly have hEds, pots, and mcas. I end up in the er or hospitalized frequently.. they give me fluids, electrolytes, and nausea/anxiety meds.
2025-07-08 04:08:06
2
mlc :
Thank you for this I feel seen
2025-08-18 09:23:46
2
Chel 🇨🇦🇨🇦 :
Omg this is me. I feel seen
2025-08-16 01:02:27
1
nicolameikle0 :
2.5 weeks of every f’ing month
2025-07-08 10:39:56
2
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