@bodikaidenandi: Duchenne Muscular Dystrophy 🎈 #raisingawareness #specialneedsparent #disability #duchennemusculardystrophy #musculardystrophy #carer #scoliosis #rhabdomyolysis #neuromuscular #progressivedisease

bodikaidenandi
bodikaidenandi
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Region: AU
Tuesday 08 July 2025 21:54:30 GMT
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mistermoongh
lu :
my cousin is one in five children with an extremely rare version of this disorder, there is no treatment for him and life expectancy is 19 ):
2026-08-25 20:12:03
1
samson.dawson
Samson Dawson :
is there anyway of stopping it or slowing the progression?
2026-02-25 09:18:29
2
asocijalniintrovert
korisniknijedostupan :
I read on Google that the life expectancy with that disease is very short, and that made me really sad. Is that actually true? I’m sorry if this question is offensive. You don’t have to answer if you don’t want to.
2026-03-12 08:31:29
5
beerisnietcool
Philip :
I had a friend when I was 4 who has it, he is still living a good life I think when I see him and he’s like 23. I have so much respect for you and your mother that you’re taking such good care of your family
2026-05-02 09:17:59
2
mewnyangel
mewnyangel :
i'm an education assistant and one of my one on one students has duchenne's too! he's graduating this year from grade 12 and he wants to be a chemist like his dad. ☺️it's nice to see more representation for it online!
2026-04-15 17:03:23
4
autumnslater5
Autumn Slater :
I had the pleasure of providing care for a gentleman with Duchenne muscular dystrophy. Despite his physical limitations, he had obtained a masters degree with commendation from the heads of the university. One of the funniest and wisest people I’ve had the pleasure of meeting. You’re doing a fab job x
2026-03-20 19:42:43
5
emmaj8372
Emma :
are yall mad
2026-08-08 22:22:32
0
simone.summer7
Simone L. Summer :
I wish you weren't dealing with this, hon.
2026-06-20 13:47:03
1
thecookingutensil
Spatula :
2026-05-25 05:05:56
0
paulahing16
Dejura :
😭😭😭
2026-04-16 02:10:16
1
mackenzie2498
🐚🌸Mackenzie🌸🐚 :
😁
2026-04-26 09:25:27
1
mackenzie2498
🐚🌸Mackenzie🌸🐚 :
😂
2026-04-26 09:25:27
0
mauro.capone
Mauro Capone :
Kalcker protocol
2025-08-27 14:18:34
4
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