@vicki6867: my story doesn’t end here. This has been the most difficult journey I’ve ever been on and I’ve been tested in so many different ways. It’s given me a different perspective on life and a greater sense of gratitude for the little things. Which I will always appreciate 💗 it has turned me into the person I am today. But don’t let that take away from all the mourning, pain, fear, anxiety, and trauma this territory has come with. It’s so hard to accept living in a faulty body. I try to remind myself that it’s out of my control, and I’m doing all that I can that is within my control 💗 #raredisease #feedingtube #gastroparesis #SMAS #hEDS #nucracker #dysautonomia #crps #POTS #gjtube #dysautonomia #fluids #port #PICC #TPN #migraine #ehlersdanlos #CRPS #feedingtubeawareness #surgery #dislocation #jointsurgery #fypシ

vicki:)
vicki:)
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Tuesday 08 July 2025 22:58:11 GMT
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ckorte13
user8441954102790 :
Wow. I just read through all of your notes. Your parents and you must be so angry of all of this. I am so sorry. I pray you find a great team of Doctor's who wont let you down and know how to make you feel comfortable with a life plan. Your a Warrior! [Red heart][Red heart]
2026-11-01 23:02:55
0
trishdeslaurier
Squirrely 🐻 🇨🇦 :
sorry if this has been explained, but did the broken arm trigger something like a catalyst, or just bring to light what was brewing? is there a connection? you're inspiring, I hope your journey becomes easier
2026-10-16 11:50:06
0
anna.alizabeth
anna :
my crps twin and biggest inspiration ❤️❤️❤️❤️❤️
2025-07-08 23:24:15
3
isaflora27
isa 🐚 :
As a fellow chronic illness girlie, I see you and I validate you and you are SO strong and gorgeous
2026-10-01 18:53:05
2
uniquelyseenllc
uniquelyseenllc :
thank you for sharing💗 so much admiration for you and all you’ve had to go through yet you still hold a perspective of how it’s bettered you as a person and will continue to do so. you got this vicki 🫶🏼
2025-07-09 00:53:39
1
madiegunn
madie :
I am praying for you girl 🫶🏻
2025-11-23 01:50:33
4
summergarnermeyer
Summy G :
A birthday with health issues is NOT for the weak, you are so strong girl!!!
2025-07-10 13:47:20
4
juleskranee
𝘫𝘶𝘭𝘦𝘴𑣲⋆🎗️ :
i understand on a level you wouldn’t even know. you are so so beyond strong and i am so proud of you. you are going to go really far in life, truly❤
2026-01-26 18:29:08
4
sydneyfreidinnn
Sydney Freidin :
It’s a privilege to hear your story as I’m sure sharing this is extremely hard and painful. Keep fighting. I have to believe there are better days for us all❤️sending love
2025-07-09 02:31:34
30
paige.gardiner
Paige :
You are so strong❤️❤️
2025-08-26 02:32:08
2
_emilykirk__
Emily Kirk :
So proud of you beautiful
2025-07-08 23:56:23
3
kenziedamron
KenzieDamron :
Wow, similar story to myself. Hang in there girl! You are resilient! ❤
2025-10-15 23:53:39
2
thesickswiftie
gracie 𖦹 :
i’m so so very proud of you vicki 🫶🏼
2025-07-09 05:18:00
3
morganmarieec
Morganmarieec :
Ah what gene do u have, i have the mylk which I’ve been told is also like a sister to vascular, but not enough is known etc so I also at the moment have the diagnosis as Heds
2026-01-10 09:20:15
1
claudiakobelak
clauudiaa :
so so proud of you lovely 💗💗
2025-07-08 23:17:39
1
brianna_towers
brianna☀️ :
seriously endlessly proud of you!
2025-07-09 01:35:47
1
brokenandbendy
Ashley :
forever proud of u vicki🤍u have been so much stronger than u ever should’ve had to be
2025-07-09 00:00:59
1
_reganne_
reganne :) :
so so proud of you girl! i know it hasn’t been easy but i admire your strength so much🫶🏼💗
2025-07-08 23:28:47
4
paula_aayude
Paula :
How much % retention did you have at 4hr on the gastric emptying test?
2025-07-08 23:20:40
4
notabsmcabster
Abby 🌷 :
I’m so proud of you
2025-07-10 01:40:39
2
brianna_towers
brianna☀️ :
your smile and determination to get better inspires me. there’s so much hope. never give up
2025-07-09 01:35:38
1
valerie_michele
valerie_michele :
This is random but we have the same exact birthday! And I am currently in nursing school :)
2025-10-11 00:47:52
1
nanahaynesx3
*Yankee*Magnolia*❌️ :
Being a chronic pain warrior is not an easy life, but you are doing an amazing job of navigating it. Sending you lots of prayers 🙏🏻💕🙏🏻💕
2026-09-03 12:21:12
0
m0dels_suck
George ✝️🧿 :
Wow what a warrior
2026-06-24 22:31:56
0
resurrectingjpv2
resurrectingjpv2 :
You’re so strong. It’s insane that they didn’t believe your intolerance to feeds. I wish you the best!!
2026-10-30 04:56:38
0
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