@edwards_linds: For my tubie friends: has your tube, esp J tube, kinked or migrated? If so, how many times has this happened? Does your tube have a balloon helping it stay in place (mine doesn’t)? Have any of you looked into a jejunostomy? Thanks for any info you feel like sharing. My GI nurse has seen my message and is notifying my GI team, so hopefully I have answers soon. #gjtube #tubie #tubielife #update

Lindsey Johnson Edwards
Lindsey Johnson Edwards
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Region: US
Thursday 17 July 2025 14:27:11 GMT
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the_kayla_chronicles
Kayla 🍄 :
My doctor would only place a straight J and I've had way less issues compared to friends I know with a GJ. I went 2 years with a straight catheter and it's been so much better since getting a tube with a balloon because I don't need adhesives anymore. Wishing you the best.
2025-07-18 02:05:39
2
pasttenseofdraw.mp3
pasttenseofdraw.mp3 :
Just to clarify some terminology first based on what you said in your caption, on a GJ people normally say “j extension” or “j port,” a jejunostomy tube is what ppl normally call a J tube and goes directly into your small intestine! I have a J tube, my surgeon does not place GJs at all because of the risk of them flipping. There’s def a lot of advantages to having a J tube, like it can’t flip, and I’m also able to get it changed without anesthesia or imaging, either in office or I can do it myself, it depends on the type of surgery you have and the surgeon’s policies though. J tubes get a bad rap and ppl say the recovery is really difficult, but personally it was super easy! I had to have it resited recently bc of complications, I went back to school/work 2 days afterwards both times, which was admittedly pushing it a little but not that bad.
2025-07-17 22:26:11
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muller_x3
dawnrmuller :
Oh crud. I was so happy to see you return last night with an encouraging update. May things look up for your birthday tomorrow!
2025-07-17 15:29:33
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meetthepeople1
Nicky 🫶🏼 :
I’m so sorry., praying for you
2025-07-18 12:41:01
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user9646162214362
diane.garcia624 :
Oh Lindsey I am so sorry. You are my favorite person to follow and I truly hope this is just a minor setback. Wishing you a happy birthday despite your current dilemma. May peace, happiness and better health be yours.
2025-07-18 01:39:28
2
kathmatath
Kathleen :
I’m so sorry to hear you’ve had this setback. I hope things are easily resolved and you’re able to get back to feeling how you were when last we heard from you ❤️‍🩹
2025-07-18 01:58:18
1
allaboutfaithandgrace
allaboutfaithandgrace :
Happy birthday Lindsey! Your talks are such a blessing. Wishing you a peace-filled weekend!
2025-07-18 06:57:48
1
babkaandbenadryl
juliaaaaaa :
ugh im sorry. sending love
2025-07-18 22:26:25
1
christafrierson
Christa Frierson :
Happy birthday!!
2025-07-17 23:15:31
1
nikkicyran
Nikki Cyran :
Oh man, this sucks for so many reasons. Good vibes coming your way and I hope you get to celebrate your birthday, even if the celebration doesn’t happen tomorrow. 😮‍💨🤗🎂🎉
2025-07-17 17:48:56
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deemaster15
Dede Germany Sims :
Happy birthday tomorrow. Praying that you’re ok!!🙏🏼🩷
2025-07-18 02:23:20
1
alicewalker47
Alice Walker :
Prayers
2025-07-17 18:09:09
1
anitamize_ky
Anita Mize :
Hugs!!🙏🙏
2025-07-17 18:25:45
1
samantha_books79
Samantha79! :
Oh hun, I’m so sorry it’s gone, well wrong. Can’t think of a better way to put it. You’d seemed so much better, not just health wise but in yourself. 🤞🏻 it’s something they can’t sort fairly easily and you’ll be back to feeling better xx
2025-07-17 20:58:03
0
bawise2021
Barbara :
I'm praying for you. Happy Birthday
2025-07-18 02:26:36
1
denisewiggins355
Denise Wiggins35 :
Sweet girl my heart breaks for you, I know I’ve never met you in person, but I wanna tell you that I’m very glad you were born. You have encouraged me so many times I just think you’re amazing.
2025-07-19 01:53:35
1
wendywoodstock
Wendy Salmon :
Best wishes on your birthday. Hoping for improvement and relief. Xo
2025-07-18 03:42:37
1
schurchill5765
Schurchill5765 :
I’m so sorry you are going through this. 🥲. Praying for your visit at the doctor. Happy birthday girl.🌼🌼🌼
2025-07-17 15:17:51
2
onelazymom
Onelazymom :
Hope it’s an easy fix!! ❤️
2025-07-17 14:40:41
2
andreagiacone05
AndreaGiacone05 :
Praying for you! I’m so sorry you’re going through all this!
2025-07-17 16:22:03
1
carrieharmer
Carriebear :
Oh no! So very sorry!
2025-07-17 16:52:02
1
missjozie123
Jozelle Wallace :
Oh, sweet friend. Yes! I want to hear an update. My heart hurts when I see you’re not doing well. Please keep us posted. ♥️
2025-07-17 21:31:09
1
amyliz46
Amy :
So sorry. You can’t catch a break. Sending hugs. 🫂🫂 Hope you feel better soon and can enjoy your birthday. Yes, please keep us posted. 🙏💜
2025-07-17 15:30:52
1
hudsonsailor27
Nancy Gill :
So sorry, I hope you get relief soon.
2025-07-17 18:11:32
1
klynne73
klynne73 :
Hugs to you.
2025-07-17 15:22:22
1
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