@mmadrigallsresearch: They told you it was anxiety or hormones or just a sensitive stomach. But what it could be your immune system misfiring every time you eat. This is MCAS. Mast Cell Activation Syndrome. And these “healthy” foods might be lighting the fire. #chronicillness #ehlersdanlos #mcas #frequency #histamineintolerance #wellness
I am hypermobile, have adhd. Once diagnosed with EoE. I never know what will trigger it. I’ve suspected mcas because of alcohol. It takes me out for days. Feels like I might be dying and literally every joint throbs. I can’t afford to sleep for a week so I don’t drink. I get so much water retention from grain and processed food. Can’t wait for part 2!
2025-07-17 22:40:49
15
angeleenamarie :
As long as I get organic items then I don’t have allergy issues, when it’s not organic my body freaks tf out. I also have severe Gastroparesis, along with MCAS, from EDS so there’s only a handful of foods I can actually digest and tolerate. The dietician I saw said I was her most complicated case ever lol
2025-07-18 17:30:44
4
Monochrome_In_Madness :
so basically I starve
2025-09-03 18:53:48
6
DGP_75 🇨🇦 :
So I guess I shall live on air and water alone 😭
2025-08-08 18:17:44
13
RIV :
Can air pollution cause these issues to worsen?
2025-07-18 00:54:10
2
Shazzie 👸🏼 Bliss Weaving :
Oats & rice make my skin fall off 👀
2025-07-17 23:17:14
1
ChronicAC13 :
Pretty much everything I eat.
2025-08-17 01:36:57
1
omarsafi08 :
In recent months, every time I experience an MCAS flare-up, I get livedo reticularis on my hands with cold extremities. Previously, I would experience the opposite: heat with redness and a burning sensation on my skin surface. There is an illegal thing that I do and I believe it helped me improve the quality of my skin and mast cell within frist two months
2025-07-17 22:56:23
0
Sunflowers :
what about eggs do they do anything 🤔
2025-07-18 20:13:06
4
Kelly :
LEFTOVERS! never eat left overs it's been a joke in our family but now makes sense
2025-07-17 23:24:14
4
LadyCelestria :
Yep. Started having allergies out of nowhere. Saw an allergist, who scratch tested me with 78 items, including citrus (which I'd anaphylactic reacted to previously)
7 epi shots in 24 hours to get under control. that was almost 3 months ago. It took me from reacting to lots to reactions to EVERYTHING. I have 15-20 safe foods. I take tons of meds & suppliments. It's been a nightmare.
2025-07-17 22:29:00
7
sunshine G7 :
how we supposed to eat 😅
2025-07-18 00:14:59
0
Alice Canada 🇨🇦 :
coffee
2025-07-18 13:51:21
2
🕸🌟Amy M🌟🕸 :
most if not all of these are on my nope list or in moderation even with DAO supplement
2025-07-17 23:02:19
2
jenna_swirly :
Interesting, for me I have determined, anything sorbatan reflated, polysorbates, potassium sorbatre, those things, then maltodextrin, dextrin, dextrose, magnesium stearate, and things treated with pesticides and herbicides.
2025-07-17 22:55:47
1
K💜 :
So basically, my entire diet. 😩
2025-07-17 22:33:50
3
NuttShel :
What are we supposed to eat? Become breathairian?
2025-08-30 23:05:49
2
lightningfury :
hehehe I hate tomatoes and citrus so much and you're telling me there's a reason!
2025-07-18 02:31:24
3
Ur Mom :
No.
Wonder I keep bad allergies. A n0se that pours like a fountain.
I eat a lot of those foods😂
2025-07-17 22:36:34
3
Ashley Topasna :
All my favorite foods :(
2025-07-23 19:19:06
3
Teal :
what's left to eat?
2025-08-23 05:03:36
1
Amanda Taylor :
I can’t even list all the things my allergy test popped on me… I can’t process fermented food
2025-09-03 12:38:43
1
Tiernanook :
what is there to eat????
2025-07-23 05:00:20
1
Living Signal Research :
What’s your story?!
2025-07-17 22:24:03
2
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