becky
Region: US
Saturday 19 July 2025 01:06:52 GMT
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turning.thepaige :
I saw someone say that the average non-chronically I'll person would have to stay awake for 3 days straight to feel the fatigue a person with POTS feels every day
2025-07-27 00:48:45
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ℭ𝔯𝔦𝔰𝔭 :
Like god forbid I rolled over in bed 😭
2026-01-01 02:51:23
800
Donutdisaster :
There is a lot we don't know about POTS, but its relationship with Long COVID and other conditions like EDS is starting to connect some dots.
2025-07-19 05:52:57
26
Jingle :
Tired and fatigue are NOT THE SAME
2025-07-19 01:56:15
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Jojo :
pots and pregnancy mixture is so awful lemme tell you. tired isn't the right word
2025-07-19 02:26:47
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Beth.1245 :
In my mind pots is just an allergy to life at this point. Gravity= bad, heat= bad, cold=bad, sitting= bad and standing= bad also. Theres always something making the pots symptoms worse and theres no winningz
2025-07-19 22:23:12
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Kallie Link :
my problem right now is my heart rate will be 135 then drop to 45 then go back up
2025-07-19 14:29:05
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Cyn :
eating is so tiring to me and people don't get it. it's bad enough that I'll skip meals bc I don't want to be wiped out from eating. which is also really bad!
2025-07-19 02:22:34
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Kal :
Debating if it's gonna be worth making food because the dishes, heat from the stove, and having to constantly move around might make me more fatigued than I already am has led to me losing so much weight 😭
2025-07-19 02:12:08
230
Sarah Novak :
Got diagonsed with POTs when I was 13, like in 2003. I feel like I’ve learned so much more about it now in 2025 lol
2025-07-19 02:13:57
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𝔠𝔬𝔩𝔢 :
No one talks about how hard it is to stand at the sink for 30 minutes to wash dishes
2025-07-26 13:15:12
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Perfectly Painted AutoPainting :
I genuinely think I have POTS. I'm chronically tired, heart palpitations, i have to nap everyday, when I stand to quickly my eyes go dark and I have to stabilize myself, and heat sensitive. how do you go about getting diagnosed?
2025-07-19 02:11:43
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Lauren💐 :
idk why people are so mean to people with chronic illnesses 😭
2025-07-21 02:07:18
135
qw_brooke :
Like just because you don’t understand, doesn’t mean you can’t be empathetic. Like goddamn do you really think we wanna live our life in bed?
2025-07-19 01:48:58
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Beth Robertson :
'how can you still be tired?' BECAUSE MY HEART IS RUNNING DOUBLE THE NORMAL RATE JUST HAVING ME EXIST. THATS EXHAUSTING.
2025-08-25 14:41:11
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Bethany :
I wish people understood why I was tired all the time
2025-07-19 22:43:04
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Phoenyx 🦇 ✨️ :
I'm not just tired, I'm lethargic. 😞
2025-07-21 01:52:58
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ally :
Thank you for helping me even understand my own body more:) hearing it being said more simply helps me explain it to other people as well!
2025-07-19 01:40:18
36
NotTodaay :
POTs and ME/CFS is a hellish mix
2025-08-04 00:58:34
5
melanietonin :
I think it's easier to tell people that my symptoms are because of my zodiac sign than my diagnosed medical condition lol
2025-08-05 06:38:31
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fx_anthony_williams :
It’s not that they don’t understand, they don’t care and expect you to still do the things they do even though their tired.
2025-07-23 20:35:50
15
Ladychaos101 :
I had a coworker that said she looked up things to do and said I could do light workouts and blah blah blah and I said try doing working out when you feel so awful. So karma hit and the next day she called out of work cause she felt so crummy. When she came back in, she told me how nauseated and lightheaded she was and I said yeah that’s me every day but I still have to come into work and I’m still expectedto act like everything is OK and still do everything that everybody else does. Can you imagine trying to work out during that? No I didn’t think so.
2025-07-19 02:03:55
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PissGirl :
I have so many symptoms of pots how do I convince my mom to get me checked out
2025-07-19 18:02:55
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White Bear Designs Stationery :
I tell people that every step I take is like a jumping jack for them. A few steps is fine but after a full day of going to the bathroom, getting food out of the fridge, etc. it adds up so fast
2025-07-19 16:15:00
6
Shaina 💕 :
Bro I was in school one day sitting at my desk DOING NOTHING no work, no writing, not speaking literally just sitting and breathing and my HR was 120 and I was passing out
2025-08-09 10:36:14
5
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