@caught_thru_looking_lens: Lunchtime in the school holidays with Thea. Thea can’t sleep without being held. Apparently it’s common with her condition. So in the holidays and at weekends this is what lunchtime looks like. I eat and hold her at the same time and don’t move for 2hrs or more until her feed and nap finishes. This fine when it’s just Thea but when the other two are here it’s really difficult especially if Daniel is working and I’m on my own. You get massive mum guilt because you can’t help or do anything with your other kids while this is happening. #cockaynesyndromeawareness #unconditionallove #schoolholidays #naptime #fyp