@jaydeconnolly0: Off-camera, the top was flung off 😂🙈 Everyone’s experience is different, but for me, clothes are the worst. They hurt my skin, my body can’t regulate its temperature, I’m stiff, and I constantly get pins and needles. #fibro #fibromyalgia #fibromyalgiawarrior #fibrowarrior #fibromyalgiaawareness
you go to bed cold so you layer up yet wake absolutely drenched 🥺
2025-07-26 15:15:09
106
Wendy :
Omg these symptoms , clothes hurting skin , bedding - I kept thinking the material was weird and buying different ones . Sleepless nights sitting not knowing what to do . Pins and needles . Tired but can’t sleep, the list goes on
2025-08-01 15:14:33
40
HeatherPRN4 :
You guys get out of flares?
2026-08-12 16:18:11
0
🏴🪽christine⭐️🪽 :
getting out of bed in the morning is the worse x
2025-07-28 16:35:42
62
uprettyface :
The neck pain is unbearable
2025-08-04 12:48:11
23
Elaine Rush ✍️ :
I relate so much. I get funny looks from my sister or dad when I say my skin hurts. I'm sorry you experience it too. 💜
2025-07-26 19:09:48
16
MadebyJayde :
Rolling, sliding, crawling, forcing… whatever gets us up, right? 😂 I feel you—fibro pain is always there in the background, flare or not😔 Sending love susan x
2025-07-27 04:42:11
24
jessiebuildsfreedom :
It’s so horrible, trying to get up is always an issue. 💜💜
2026-04-10 19:22:53
1
Birdiepop54 :
im a hypochondriac apparently
2025-07-28 07:54:26
5
Ang Sofia :
to me it's the legs that hurts a lot, everyone is experiencing differently
2025-07-26 23:14:47
6
Nannietiktok72 :
Am like this everyday and in constant pain but am starting to suffer with my neck and headaches now but keep getting fobbed off it’s a total nightmare 😢
2025-07-27 18:15:43
10
black widows revenge, karma :
hello fellow fibromyalgia warrior
2025-07-27 18:31:01
5
Just Joan :
I get this too. Thought I was on my own with this skin thing. So hard to explain. Take care lovely x
2025-07-26 15:48:36
5
Amanda 🇬🇧 Fibro warrior 💜💜 :
It's horrific 🥰 really hope you are OK sweetie 🥰🥰 I hate the sweats, the pain, the tremors, the inability to move freely
2025-07-26 20:54:40
6
ℕ𝕠𝕣𝕔𝕠𝕤𝕡𝕝𝕒𝕪 :
I can't grab anything with my hands, and my fingers are locked up in a fist. And I have to keep my elbows stretched out. and I have to lay in bed 1 hour every morning to slowly make my body move normaly. if I don't do that, all the pain will double up and last out the day
2025-07-27 11:26:16
8
Jacquie Jones :
People who don’t experience this are clueless. It’s a constant struggle to be “normal “ when the pain suffocates your every muscle. Cramping, hurting, tired.
2025-08-03 18:23:59
15
Vicky Dunmire :
I have these all the time. Fibromyalgia is horrible 😢
2025-08-08 01:41:43
16
💜✨️An✨️💜 :
zo herkenbaar
2025-07-28 21:00:45
1
georgecooper48 :
A flare is the equivalent of being in a car crash, whiplash & stiffness all over, the pain is horrible
2025-09-28 17:50:00
2
Tee Tee :
feel your pain take care and rest 🥰
2025-08-01 18:04:16
2
JustTryingToHuman :
Feeling it!
2025-07-30 10:41:07
2
Michele Christine❌ :
That’s me today
2025-08-08 23:34:29
2
CorvusCorone :
no one gets it until they got it. today I just cant cope with it. in a flare with this and adenomyosis carpol tunnel and plantar facitis. so mad at my body
2025-07-30 08:58:44
4
Debbie :
I feel your pain. I’ve had fibro for 10 years 🥹😢
2025-07-30 12:16:42
3
Pedro :
I’m exactly the same I feel your pain I’ve had an infusion today 🙏🙏
2025-08-02 20:28:45
2
To see more videos from user @jaydeconnolly0, please go to the Tikwm
homepage.