@madcityyy: Being vulnerable for posting this is scary but I want to show what my condition can do to my body. POTS has truly changed my entire life, and I haven’t posted anything like this before. Please remember to be kind🩷🧂 #pots #fyp #potssyndrome #longcovid #potsie #adrenalinedump #potssymptoms

maddy 🧜🏻‍♀️
maddy 🧜🏻‍♀️
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Region: US
Monday 28 July 2025 23:00:31 GMT
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charoletteelizabe
Charolette Elizabeth :
can you tell me how you got help, I saw a cardiologist and asked to be tested for pots all she did was have me sit in a chair and stand up and bc the hr wasnt significant she ruled it out
2025-07-29 01:02:54
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jjisfunny11
Justine🦦 :
Omg I’m so sorry I get these all the time you are not alone, do you get super dizzy when this happens? I do . Wondering if I’m alone
2025-07-28 23:27:39
2
garrettlamoree
garrett :
god my heart hurts for you maddy🥺 i can’t imagine how this feels and i hope that you find some sort of relief for what you’re experiencing🫂🩵
2025-07-29 02:45:43
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sarahscreativecla
Sarahscreativeclaws :
Fellow pots girlie, thank you for spreading awareness about this! My first adrenaline dump was soo scary and I had no idea what it was!
2025-12-08 04:16:46
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chronically_bri_
Bri ❤︎ :
I’m so sorry you’re going through this ❤️‍🩹 adrenaline dumps are so scary and truly one of the worst experiences to go through. I’m sending you so much love and spoons 🫶🏻🥄
2025-07-28 23:17:25
4
abducted.xbyx.aliens
🛸𖤐𝕸𝖊𝖌𖤐🛸 :
Covid in December of 2023 has completely ruined my life.. I also have long covid pots and this is one of the worst parts.. aside from being dizzy everyday. I haven't had a day where I haven't had extreme vertigo all day long.
2025-07-29 00:25:34
2
jessradcliffe
Jess :
And they always say “it’s a panic attack” 😭 not even close. So sorry you go through this too.
2025-07-30 01:03:17
0
freddymurphy1
Freddy :
With my the same thing happens except I get extremely cold and freeze and shiver uncontrollably and nothing I’ve tried can help me warm up
2025-10-17 09:39:46
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gtid81
GTid :
I'm so sorry you're going through this. I'm here to help by sharing. Thank you for showing us. 🫶
2025-07-29 01:07:19
1
noscopesierra
sierruh 🦋 :
mine look just like that 🥺 they almost always happen coming out of sleep too
2025-07-28 23:47:01
2
cal3pal1999
Cal :
Proud of you for sharing your story! Praying the doctors can help you!
2025-07-30 15:35:04
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myhopefilledlife
myhopefilledlife :
This happens to me and my teeth chatter sooo bad. I had an awful spell a few weeks ago and had to go to the ER and my teeth chattered for 6 hours straight. I’ve never had a spell last so long. I’m trying to figure out what happened. Mine originally was from Covid in 2020 but it’s been in remission until the last 3 months.
2025-08-11 23:04:34
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nataliepaige0614
✨NataliePaige✨ :
so I developed pots in my teens and not due to having covid or long covid but I do have these episodes very often. thank you for sharing your story and helping the spread awareness!
2025-07-29 01:05:56
1
aleelizzbeth
Alee :
I woke up like this the other day
2025-07-29 23:45:10
0
winner2champion
Sam|W2C 🥄❤️‍🩹 :
The shaking is the worstttttt🥺 im always laying knowing i can’t do anything but saying over and over “i don’t know what to do”
2025-08-01 19:39:04
1
julia.gulia.__
Julia | SAHM 🩵🩷 :
Sending you love Mad dawg!!!
2025-07-30 21:14:14
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charoletteelizabe
Charolette Elizabeth :
omg this is what happens to me I was told it's just anxiety
2025-07-29 00:59:54
1
gracera22
Grace :
I also get convulsions from POTS. My neurologist put me on a RLS med and it helps so much! Still get the shakes but no convulsions in a year!
2025-07-29 11:49:19
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daddyssouthenbell
🦋Kat🦋 :
Thank you idk why I haven’t stopped and recorded myself! I’m going to try and remember to do it on my next episode! Maybe then my dr will believe me
2025-12-11 18:17:49
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xjnicolex
xjnicolex :
Thank you for sharing, I experienced a dump this past weekend and my teeth were chattering so hard I put my sweatshirt in my mouth to try and help this sounds exactly like what I experienced.
2026-03-17 02:46:25
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fordchick0609
Dayna Friedrich :
I have pots too. The drs are just learning now it stems from are Vagus nerve. Pots hasn’t ever really been studied along with fibromyalgia. Just now they are doing “research “ on it.
2026-02-17 19:32:23
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hrz.imgnt
2021 :
😭
2025-11-14 23:37:14
0
mallor_itaville
Mallory Cowell :
Wait this just happened to me after a nap Sunday! I felt out of breath and my muscles were just twitching everywhere shaking so hard on their own… I thought it was a blood sugar drop but I didn’t have the usual vertigo feels that I get with that… ugh EFF Covid. Had it in 2022.
2025-07-28 23:39:35
1
noscopesierra
sierruh 🦋 :
and it’s so stressful trying to keep your legs elevated when they’re shaking like that 😔
2025-07-28 23:49:10
1
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