Saving Liv
Region: US
Friday 01 August 2025 19:45:45 GMT
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Tracy Tijerina :
I hope you follow Logan & his amazing mom & family. Support is so important & Logan is 18
2025-08-02 00:10:39
355
Kristin Gosdin :
I’m confused on why the diagnosis was constipation when she was having loose stools
2025-08-23 15:30:32
15
takethisandloveit :
It’s scary that her peds didn’t notice those physical features. She is so cute ❤️.
2025-08-02 01:03:11
3254
haan 🇺🇸🆘 :
there is nothing crueler than hindsight. please be kind to yourself.
2025-08-12 00:47:15
1988
Taquito Jalapeño :
what were the chances your other child could have had it?
2025-08-02 05:04:52
39
jewelmist.ca🇨🇦 :
NICU/PICU nurse - please don’t feel bad about not noticing things like her facial appearance. Sounds like she saw plenty of medical providers for her ear and skull issues. None of them saw anything either. I hope you have quality time together as a family. She’s lucky to have you as her advocate and her mother. ❤️
2025-08-03 04:21:31
1007
Typingirl61 :
I came across your video and saw this picture of you daughter, I knew immediately she had Sanfilippo Syndrome. I had 2 nieces who had Sanfilippo and it comes with very distinct facial features. We had never heard of it until their diagnosis. I wish you strength as you travel the road ahead with your daughter. Make sure to take care of yourself, as you cannot care for others of you are not cared for yourself.
2025-08-06 12:25:14
481
Erin :
can i ask what you put her unique (beautiful) but still very unique facial features down to? as her mama who just seen her beautiful little girl did u not notice it? or did u ever enquire about it on your own? ; or was it only until the doctor brought it up ?
2025-09-29 09:59:48
7
✨✨✨✨✨ :
Have you always had this demeanor? Your grace, emotional intelligence, knowledge, intellect, compassion. Were these all present and just increased through loving Liv ?
2025-08-02 14:39:36
389
Angel :
Did you have genetic testing during pregnancy?
2025-08-03 01:53:27
18
Christine_Stougton :
I have a question if you don’t mind me asking. If this is an enzyme that they are missing do you think there will ever be a time where an enzyme therapy will ever be available to decrease the buildup?
2026-02-06 01:23:34
35
Melina🌻 :
You explain everything so well. The pacman description is so helpful. And as always, sending you, Liv, and your family all the love in the world 💜
2025-08-02 01:54:20
113
spamakiiii._0 :
Help this poor woman save her child
2025-08-01 22:11:45
339
Kim VanderKlay :
You are an exceptional mom. My heart aches for you and your husband. Your resolve to help other families is inspiring, especially knowing it may not happen in time to help Liv. Please know we are praying for you in Michigan. ❤️
2025-08-01 20:12:02
488
Chey :
She has your eyes❤ Always know you carry your daughter with you❤
2026-01-18 20:48:35
17
Colleen Still :
rare disease mom here. different diagnosis..I'll never forget when genetics came back. Liv is an amazing little girl.
2025-08-02 11:41:24
91
Kelly :
She’s an adorable little girl ♥
2025-10-18 00:55:50
6
Voon Chile :
Keeping your family in my prayers.
2025-10-13 06:07:54
5
jax🌌 :
how did you find out what infections liv had and what was causing them
2025-09-25 16:17:19
5
erikarodriguez9045 :
what does her facial features have to do with her illness
2025-09-06 00:33:23
9
donnamurray1 :
She is adorable!!
2026-03-30 04:43:29
6
phyllismaynard003 :
my heart goes out to you ...you are a wonderful mom
2025-08-02 13:11:30
83
Pages of JOY :
So sorry mama. Thank you for sharing your story
2025-11-18 04:38:08
5
Kylie•Rae💛🍋 :
“We do the best we can with the information we have.” You pushed for answers and did all the right things. Liv has amazing parents to advocate for her! Bless sweet Liv, mom and dad, and family. 💛 My heart hurts for you all.
2025-08-01 23:24:58
120
Angelique :
You can’t see things sometimes in your children because they’re your children and not a characteristics of something. You see and accept them as they are. You’re doing incredible work.
2025-08-14 12:15:45
76
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