@charlottebrad93: Real & Raw draft 1 year we still have no overall diagnosis, we have 'descriptions' #visualimpairment #globaldevelopmentdelay #focalseizures The constant waiting, what ifs & maybes are the worst part. No guidance, no support & having to source everything he needs ourselves because an OT waiting list is LONG The mental load of appointments, medications & medical professionals to keep track of The emotions & thoughts overwhelm me daily The physical tole of carrying over 2stone around everyday because hes like a floppy rag doll is exhausting The constant planning to even have a day out incase of a seizure has my aniexty always on alert The praise of me been strong, im not strong im just a mum in survival The world doesn't owe us nothing but I will make dam sure he gets what he needs in the world 💪 #mulife #babyboy