@chronicallypersevering: It’s honestly so surreal to me that 9 years ago, I started sharing my life on social media! I thought it was a fun way for my friends, classmates, professors, and family to get to know my new lifesaving furry best friend. I quickly learned I couldn’t share about him without sharing why I needed him, so I turned the camera around and introduced people to my world. And ChronicallyPersevering was born! We have grown so much over those 9 years. Whether I’ve been posting from the ICU, rolling runways, or catching (and making) waves- you’ve been there with me through it all. Lately I’ve felt a little lost in that whirlwind and decided it was time for a new chapter. To me this chapter is a community where we don’t feel like we are “too much”, or “too extra” and know that we are enough exactly as we are. A place where we choose to love ourselves and decide that the ultimate goal is maybe just as simple as “choosing to find the happiness in everyday life”. Welcome to In Rare Form. It truly is an extension of all of this love, it’s the brain dump of a disabled girl in the world, whose conditions are chronic but style is iconic. Where we are learning, growing, and diving even deeper together every single day. I’m honestly just so grateful for this community and hope you will join the In Rare Form community over on substack (the link is in my bio) C:D Video description: A montage of Cienna, a blonde haired woman in a wheelchair as she travels, surfs, is at the White House, rolls runways and so much more. She is always wearing a fun stylish outfit and is always 100% herself no matter if that’s in a hospital bed or at fashion week. #Substack #Disability #DisabledAndProud #DisabilityPride #chronicpain #ChronicIllness #InvisibleIllness #TravelGuide #SoloDate #SoloTravel #SurfLife #ParaSurfing #GirlsSupportingGirls #SurferGirl #TerminalIllness #BabeWithAMobilityAid #DisabledAndCute #ROHHAD #RareDisease #Travel #Wheelchair #WheelchairLife #WheelchairGirl #AccessibleTravel #FemaleTraveler #MentalHealth #DisabledJoy #WhatToWear #OutfitIdeas #DisabledFashion

Cienna

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Friday 08 August 2025 21:18:33 GMT