Dr. Erin Nance 🇺🇸
Region: US
Thursday 14 August 2025 15:21:08 GMT
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funziez :
Can anyone else hear/feel fizzing or pop rocks at the base of their skull sometimes?
2025-08-14 21:16:55
4138
Whatsoever :
How can I get a Dr to care?
2025-08-15 03:08:20
1004
Boopea 🤘🏻 :
I told my doc about my neck pain and that, and she said it sounded like craniocervical instability. I said ‘So, I’m basically a bobble head?’ Lol I’m hypermobile. I believe I have hEDS.
2025-08-15 02:37:27
606
Breanne :
Wait your head being too heavy for your neck is not normal?!?
2025-08-16 02:22:21
626
☆ Hannah ☆ :
when i started doing neck rolls every day for my neck pain per my chiropractor, i told them that when i tilt my head forward and move side to side i feel a popping. they said it was nothing and that sometimes it just does that. i asked them if it happens to them and they said no. can we please normalize saying "I'm not sure, let's look it up together"??
2025-08-15 03:37:29
205
D :
Every single day. But there’s “nothing they can do” and “it’s too hard to diagnose” and “there’s nothing that can be done”
2025-08-15 05:26:34
240
𝕷𝖊𝖓𝖆 𝕭𝖊𝖆𝖒🦇 :
Sometimes I hear what sounds like knuckles popping under water just trying to keep my head up lol no one can tell me why my neck has its own headache
2025-08-14 15:47:39
161
Poofiemus :
For those with hypermobile necks or the instability, what do you do for sleep? It's so hard to find a way to stabilize my neck in a neutral pose *and* relax those muscles for the night
2025-08-16 02:44:41
158
LookAtTheFlowersLizzy 🌼🌸🌺🌷 :
Headed to Nashville for an upright MRI with flexion and extension next week. Praying for proof!
2025-08-14 18:21:02
44
Bernice V :
Neck always sore clicks and Chunchy, shooting pain travels anywhere in my body, even in my organs, my eyes, throat literally everywhere
2025-08-15 03:30:57
88
Taylor Elizabeth :
I can’t get anyone to listen to this!!!
2025-08-14 16:51:57
106
weird_with_a_purpose :
constant pain and anything touching my head causes pain including hats and glasses
2025-08-14 22:17:15
17
Art - Karen Pattison :
Yep. Instability from C1 misalignment. Caused by whiplash, bad posture, stress etc. Creates everything you mentioned and more,,,nerve and artery compression, brain stem inflammation, nervous system disregularion, MCAS etc etc. Upper cervical Chiro treatment with Blair method is helping me.
2025-08-14 18:09:18
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HexedXP :
can you have high pressure when you get an LP with this? I was diagnosed with IIH...but I had a shunt placed, lost 60 lbs, and the pain and confusion is still debilitating.
2025-09-14 18:12:44
6
Stephanie Laughlin Gibbs :
And what is done to fix the problem
2025-10-12 04:49:14
5
Stevie-Rhi :
It SUCKS! hEDS here, it causes so many migraines 😭
2025-08-15 06:14:42
54
Kerstin :
I have these symptoms. Doctors diagnosed me with fibromyalgia, but I don’t believe that’s my diagnosis. It’s so exhausting to go to all these doctors only for them to say nothing is wrong. This pain is debilitating, and most days I don’t want to move. But if I don’t move, the pain gets worse. I constantly have to make sure I move just enough but not too much so the pain doesn’t get worse. Doctors keep sending me to psychologists and physical therapy rather than listening to me. I gave up on doctoring, but I don’t want to live in this pain for the rest of my life.
2025-08-18 12:56:07
5
<59_secondes :
Thank u for your post ! Month after month, year after year … I feel alone and lost with my symptoms. And have to take naproxen 3 days by week
2025-08-16 22:06:35
5
KarlaEliana :
Who diagnoses EDS?
2025-08-14 16:29:04
162
Brooke :
Can this cause Chiari Malformation? I have the symptoms you mentioned. My neck is always sore. I feel a lot of pressure and dizziness. My MRI said 7mm Chiari Malformation.
2025-08-15 01:16:04
14
RiRi🩷 :
Omg this is me on the daily. My doctors keep blowing me off and saying its anxiety. Im scared. I cry everyday. Any suggestions please help
2025-08-14 20:25:03
16
Amberlee 🦋 :
How do I get my doctors to take this seriously? I have EDS and POTS and have all the symptoms you mentioned aside from blackouts and more. I’ve had the right scans and my neck looks off but to them they say is normal… I know it’s not normal to have to hold your head up constantly
2025-08-14 18:47:59
82
DeahLore :
How is it diagnosed/ how is it treated? I am thinking a standing MRI because when I lay down my neck is way more stable / normal than when I am upright, if that makes sense? 🥰 - But then how is it treated? 🥰
2025-08-14 16:38:34
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Daisy Blümi ~✝️ :
Thats my cervical spine...Doctors in Germany still saying to me, that THIS is normal... I am Bedridden. i was healthy. They keep ignoring me. They ignored me until I became bedridden.
2025-08-15 10:41:39
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Michelle 🖤🦇 :
This sounds like me, I’m hyper mobile, and had a spinal fusion I probably shouldn’t have had . I didn’t know I was hyper mobile at the time. . I’m getting a CT scan to see if it failed, causing pseudo arthritis . I have genetics testing for CMT. Suspect AS, POTS, PsA, . There are so many days the pain is so bad, and rest doesn’t help. It gets worse the cracking, the tightness, occipital neuralgia w/ unbearable migraines.
2025-08-14 19:26:27
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