Dr. Grace | hEDS, pelvic floor
Region: US
Saturday 16 August 2025 00:37:40 GMT
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megcourtneyc :
PT for my pelvic floor and core helped me. I was compensating with my neck for everything.
2025-08-16 01:55:20
89
Libz :
I hear so much about having this but no options for treatment. What do you do to stop and control this
2025-08-16 19:59:12
42
LottieStarCustoms :
I have hEDS and I keep a neck brace in the car for when I have to make longer drives
2025-08-16 10:10:52
32
millymollymandy24 :
I have a trapped nerve in my neck, I suspect this is the cause
2025-08-16 01:00:47
45
Catherine S ❌ :
My throat, the back of it is always in spasm. Hard to swallow. I’m constantly yawning to stretch it. I’m so tired of this
2025-08-18 13:08:46
7
catahoulababy :
trying to explain that my head feels heavy, but not because I have a sinus infection is so hard 😫
2025-10-04 19:57:42
19
Boo & Sassy :
curious if anyone has sensitve scalp/hair as well. like, a tangle is torture and ponytails hurt. Anyone else ir is that just me?
2025-09-12 14:53:55
16
Sonja :
I feel like a marionette that has to hold their own strings
2025-09-22 06:27:02
31
Karen | Gen❌ Health & Wellness :
This explains why I was so injured by whiplash after getting hit by a drunk driver.
2025-08-16 18:57:58
11
Rosegirl :
So helpful, thank you!! Also, what are your thoughts on vibration plates? Beneficial for us with hypermobile EDS?
2025-08-16 00:56:45
9
Hal :
Will imaging show this instability/ ligaments? What is the best way to diagnose? I’m 99% sure I have this but am being treated for cervical dystonia instead
2025-08-20 04:52:35
2
Girl with rage :
My doctor wouldn’t check me for ehlos Danlos cus she said “it’s rare and the people with it are very, very sick” so idk what to do
2025-08-16 07:20:38
8
megan :
I’ve been relating a little too much to your hEDS videos AND this are treatments my physical therapist gave me for neck/shoulder issues… might be time for me to see a doctor LOL
2025-08-16 01:41:16
26
origami robot :
Would you consider doing a video of subtle activations that would set us up for the day?
2025-08-17 22:56:11
1
monkeyface :
Please can you do a video on the PAIN between the shoulder blades!!!
2025-08-16 12:31:54
43
ahmarzing :
so much of what you say relates to me but then when I do the majority of EDS tests don't reflect my experience 🤔
2025-09-08 22:19:45
1
DoodleDreamer :
Is this hyper extended/flexion? I am diagnosed with Hypermobile Ehler-Danlos Syndrome. I have symptoms of CCI/AAI instability, I have a doctor's appointment coming up but its hard for me to tell if it looks off. Also its hard to tell because I'm overweight and have neck fat 😐
2025-12-31 04:20:04
0
DENY. :
a couple of our presidents had ED syndrome, notably anomg them Lincoln
2025-08-17 20:26:03
0
Grace_superspam🎐 :
what about feeling like your head abd neck are too heavy for your upper back
2025-08-16 07:28:05
7
amandaaaa :
Sometimes I become consciously aware of how heavy my head is or hands are and it freaks me out so bad!!
2025-10-14 03:44:41
2
🇨🇦Atlas.Cosplay🇬🇧 :
please tell me you have constant teeth pain too. I've been to a few dentists done every scan and my teeth are totally fine but because the jaw is weird it causes nerve issues.
2025-08-17 01:39:11
4
tt :
My jaw stays clenched 😭
2025-10-07 17:15:52
1
…. B r I d g e t ….. :
wait I describe myself as a bobble head all the time, had no idea other people felt that way, signed a newly diagnosed hEDS person
2025-08-18 03:02:45
1
monkeyface :
And scoliosis is a reason too and common with us
2025-08-16 12:32:14
3
Em_prem :
Not me watching this with my teeth clenched and shoulders scrunched…. 🤦🏻♀
2025-10-07 04:32:05
1
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