@pointoftheileum: Getting diagnosed with Crohn’s or UC in the NHS isn’t always easy. Here are practical ways to advocate for yourself — from preparing before appointments to knowing your rights when you feel unheard. You deserve answers and the right care. #CrohnsDisease #UlcerativeColitis #chronicillnesslife #invisibleillness #advocateforyourself
I'm going through the tests but I've been told it is more than likely Crohn's, this has been going on for a year 🙈
2025-08-19 11:40:47
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Fecal matters :
Classic chronic diarrhea history. GPs were fine while they thought I had crohns or colitis. When tests came back negative. They always lost interest and just gave me the classic “ it’s just IBS , stop feeling sorry for yourself and get on with it* . It wasn’t just IBS and I wasn’t feeling sorry for myself. I have a rare malabsorption illness. It took £10 k in private medical investment. A test the NHS doesn’t even offer. Post diagnosis I still gaslit when it comes to prescription s for opioids and muscle relaxers. It’s horrible
2025-08-18 19:13:14
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Em G :
I needed to hear this, thank you. I always thought I’d be able to advocate for myself very well, but the fact I’ve been living with this for 20 yrs and I’ve only just entered the system properly probably means I haven’t. Thankfully my partner will be with me, he has lived this too and will absolutely be my voice if I can’t.
2025-08-18 20:19:34
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Ian Evans :
I changed health authorities and feel ignored now. My scan in 2022 showed it was in remission and feel they don’t want to know now. All they have done is taken biopsies and confirmed that I also have diverticulitis, scad and given a dietitian appointments which are pretty rubbish as I have had crohns since 2013, so my current flares are not my first rodeo!!
2025-08-19 14:46:10
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Milly | Sharing my 20s 🍒 :
Love this!! 💜
2025-08-20 06:09:29
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💨💜💪ᵀᵃᶜᵒᵐᵃ ˢᵖᵒᵒⁿⁱᵉ 💜💪💨 :
So excited for you, darlin! I’ve been married for almost 8 years now, and it’s the most rewarding and fulfilling experience ever! Marriage teaches you things about yourself that you don’t know… and you learn how to be a better person through your partner! ❤️
2025-08-18 19:00:07
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✨ℕ𝕦𝕔𝕖𝕣𝕪 𝔽𝕒𝕤𝕙𝕚𝕠𝕟🛍️ :
You are looking pretty😘, can we give you stuff like Swimsuit and Jewelry Tool and other lovely stuff from our store Message us❤️❤️💗
2025-08-20 12:33:35
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