@chroniccarehr: I’ve had ME for almost 20 years. I’m in pain every single day. I also have fibromyalgia and a chronic back condition Yes I still get asked if I’m feeling better no I’m not I have a Chronic illness which is incurable , I never feel better. I’m always in pain but some days I’m in less pain than others - those who get it, get it and those that don’t, won’t 💜💪😂##spooniehumor##mecfs##fibromyalgia##chronicillness##spooniesoftiktok

Chronic Care HR & Support
Chronic Care HR & Support
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Region: GB
Tuesday 19 August 2025 07:00:00 GMT
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mindynmork
Amanda L 🇬🇧 :
Agreed! I just wondered how your ME began because I have had fibro since 1988 aged 18 following serious gastroenteritis but after so many years I still question that. It took 22 years for the fibro diagnosis and I did ask for a referral to the CFS clinic in 2010 but it was refused and I was told by letter by someone who never met me that I had my diagnosis and to request further care was self serving!
2025-08-19 07:24:10
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