Stacimichelle
Region: US
Tuesday 26 August 2025 23:05:14 GMT
73336
2899
142
285
Music
Download
Comments
jennig210 :
Wishing you the best with this treatment. My mom has been getting the infusions for over a year and it has helped in delaying the progression.
2025-08-27 00:05:33
187
Meg :
My brother has early onset. Almost 18 months on it and I think it stabilized symptoms. Insurance stopped approving and to date he has missed 12 infusion’s. He traveled (not well) and I believe the disease has progressed and we are looking at a new baseline. More emotional and having difficulty remembering during a convo. Walks same route every day and has forgotten his route. Don’t let insurance mess w/ your treatments. ❤️
2025-08-27 01:23:55
45
Alix Defouloy Filer :
My mom was on Kisunla, after the third treatment had to stop for brain bleed. Our neuro said she was first patient since prescribing that he’s had to dicontinue. Very disappointing for us but soooo happy there is a new option and an option for you!!
2025-08-31 14:43:03
39
bee :
My sister is 68 and has been on it since March
2025-08-31 22:04:27
4
Lulu 💜 :
how many treatments will you need?
2025-08-27 19:58:03
10
Alena :
Thank you so much for sharing! My stepdad gets his first infusion this Thursday. This video will answer all his questions & needs♥️
2026-02-23 17:49:22
1
Carol ☀️ WPB :
How’s it working for you? Mom is on her 21st treatment and not her stabilize. 🥺
2025-10-02 17:27:12
0
Isabel Hernández :
What are your symptoms of the early onset now
2025-09-11 02:51:49
7
Lindi :
I’m living with early onset Alzheimer’s disease
2025-10-31 18:47:50
1
user1125588031194 Granna Tocs :
My husband is getting ready to do his 6th month
2025-09-04 02:45:45
21
Kitty :
I hope it helps you improve.
2025-08-26 23:48:19
70
gabby :
seems like my doctor and I need to have a talk. I'm not sure if this treatment is just for Alzheimer's but I do have cognitive impairment and I have not been able to get him to understand that it's getting worse. I guess probably I need to try to remember that we were supposed to have scheduled that cognitive test again this year
2025-09-01 01:48:55
1
Becca :
I wish this was around when my mom mom was alive
2025-09-11 01:07:40
7
Lilblue23 :
I really hope this works for you! My mom had early diagnosed Alzheimer’s and it’s 10 years later and she is late stage. Hoping the best for you!
2025-08-27 03:01:45
9
Kim Weiss :
I'm so glad you have a supportive mom
2025-08-28 01:31:13
5
Binxx :
If you get it again ask for pre and post infusion meds like benedryl Tylenol Zurich Pepcid etc they should have a list they can fix based on the reactions you had when you got home
2025-09-14 10:50:46
14
ellenmcc :
Do you follow Ladyt?
2025-08-27 01:14:47
6
Heather Jen ❌tra :
Neurologist and I currently at war with BCBS to cover my 62 yr old husbands infusions. He should have started back in March. I’m so happy for you and wish you the very best of luck. Big hugs and well wishes from your TN friends. You’ve got this!
2025-09-03 00:44:15
10
Julie DePaolo :
Thank you for sharing your journey ❤️
2025-08-28 00:56:42
10
MEL✨ :
I hope it works wonderful for you!!
2025-08-28 11:34:27
6
megstar630 :
praying it works
2025-08-27 10:00:47
6
Andy McKeegan743 :
Good to hear that you have started like the infusions! I have been on mine for almost a year now, and I would like to think that they are helping me, I don’t feel that I’ve progressed much since I’ve started taking them. When I had my first one, my doctor suggested that I take some premeds along with it to help with some of the side effects that Usually will happen with at least the first one or few. I take Tylenol at home before I leave, and before the infusion, I get a bag of fluids and solumedrol, a steroid. Even though I did all this after my first infusion, I still got pretty sick that night and the next day. Like you said, headache, cold sweats, flu like symptoms and a slight fever. I’d like to say after three infusions I was able to not do the premeds however, recently I’ve been having headaches so my last one I did the premeds which seem to help the headaches. Hope everything goes well with yours! It sounds like you are at a pretty nice facility, mine are done at the hospital and the norm for me is 2 to 3 hours! Even my doctor, who is at a different hospital an hour and a half away thinks this is ridiculous because there they only take an hour.
2025-08-27 00:33:52
20
egio :
I hope it helps you so much! Update us pls
2025-09-14 17:25:31
3
Robin H :
Always praying for a cure! My mom-64 years old-has been diagnosed. We go tomorrow to get her treatment plan from the neuro. I am going to share your videos with her as she is very nervous! Thank you for your story!
2025-10-15 00:32:56
1
To see more videos from user @tryingnottoforget, please go to the Tikwm
homepage.
