aly.advocates♿️🇺🇦🏳️🌈
Region: US
Wednesday 27 August 2025 02:50:24 GMT
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aliceck16 :
This is such a frustration of mine within the autism community. More and more people are trying to deny the existence of low/moderate/high support needs, suggesting anyone can have high needs on different days, but it is just a fact that there are some autistic people who are profoundly disabled and need 24/7 full care, and others (myself included) who are significantly less disabled and require less support! Low need isn’t no need, and high need isn’t an insult.
2025-08-27 18:26:10
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blacksheepinwolfsclothing :
Why she’d make another one 💔
2025-08-27 13:12:14
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Stephanie Falcon599 :
I think a lot of us with invisible problems hear “well at least it’s not ____” so much we get defensive, and I get that because I’ve been there. But her take was not it. Your nuanced take here is spot on.
2025-08-28 03:46:42
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‹3 :
even within the same diagnosis, different severities exist! i personally consider my POTS to be moderate bc i do faint and when my flares are bad they are BAAADD; but i know that there are people who have it worse than me. with the right medication and treatment, i am able to work a full time, low physical intensity job. it would be incorrect at best and ableist at worst to suggest that my POTS is just as bad as the POTS that someone else has that keeps them fully bedridden. it’s not rocket science it’s just basic empathy!
2025-08-27 19:07:03
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finnlover67 :
I have mild chronic pain from hypermobility and I would never tell my brother who uses a wheelchair around to get everywhere, including around his apartment, that I am equally disabled as him. Because I’m simply not! I don’t experience what he does and that doesn’t make him more “special” than me, that does not and should not hurt my ego. It’s so strange how people treat it as some badge of virtue 😭
2025-08-27 18:11:18
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Demeterssad :
As a caregiver we are taught that being disabled is inherently traumatizing. I believe that if we had better mental health care for the disabled community people wouldn’t feel the need to put themselves above another. If that creator took care of her mental health and processed the built up resentment for the way she has been treated I think she’d have a much healthier stance on this. It is WILD to want a cancer diagnosis and it really shows she’s not secure within her own illness. I really like your take on this
2025-08-27 04:26:54
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leaf🌙🌱 :
Me and my mom are both disabled. I’m able to do a bit myself, but need a rollator to get around outside the house. I have osteoporosis, scoliosis, scleroderma, HEDS, POTS, and suspected endometriosis. My mom is bed bound and can’t walk or sometimes feed herself. She has MS. We are extremely different, but my mom recognises that my struggles can be difficult to me, even if she is worse, but I in return feel like she is more disabled than me due to the way society views disability. The way society views disability as a whole really skews how we view our own disabilities, which is sad
2025-08-27 09:34:35
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ViktoriyaGrace🧡🦓 :
I have to say I love your response to all this. This was clarifying as I have Ehlers danlos like allison and how you educated and stated your thoughts was done with grace as its all about growing and learning and your approach does just that without being nasty to her. I do hope she sees this as it made me think as well. Just thank you for being kind
2025-08-28 04:05:37
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Violet Key 🇨🇦 :
MIC DROP. So incredibly well said.
2025-08-28 03:53:08
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Alex Lee :
When she started talking about “intersectionality” but not using it correctly I immediately unfollowed. I think she thinks that it’s lumping everyone into one big mixing pot of identity but she doesn’t realize that there are separate identities that intersect to make people unique. I appreciate your take on this!
2025-08-27 03:38:52
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troutwhiskers :
This whole conversation has made me want to cry bc I have a family member with intellectual disabilities and it usually feels like like no one on the online disability community can acknowledge their struggles. Thank you so so so much. I think everyone in the chronic illness/disability community who hasn’t done any significant intersectional work needs to watch crip camp right now!!!
2025-08-27 17:12:36
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Dakota🫶🏻 (Taylor's version) :
I have autism, hEDS, fibro, and other disabilities. I'm not able to live alone (I went from living with my grandparents to living with my sister), I can't hold a job, ect. there's absolutely disabled people who have it worse than me but there's also disabled people who don't. also I think it's less the disabilities themselves and more about how much they impact your daily life
2025-08-27 07:03:15
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shapeshifter.cosplay :
I agree with everything you said with a bit of nuances. for example I have both eds and ms but I don't experience my symptoms as severely as some other people. I do not think it is ablist of me to be thankful that I don't have worse symptoms. if someone disagrees I would like to understand why? I would appreciate genuine explanation
2025-08-27 08:24:39
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Alliewheelz :
It’s not a competition we have to stop in fighting and work with each other.
2025-08-27 04:35:06
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amorina • lesbian disaster :
Just because you arent the most disabled doesnt mean you arent valid, its frustrating to hear that our struggles are equal all around
2025-08-27 03:34:33
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raven :
i have moderate me/cfs i would never say that i have it harder than someone with severe or very severe me/cfs. i’m autistic level 2 and i would never say i have it harder than a level 3 autistic ! it’s so frustrating. recognising ur own privilege and marginalisations go hand in hand
2025-08-28 05:40:15
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bloffin :
this!!! i've been ranting about this all day, haha. i agree superficially with her argument that infighting isn't the most productive thing to be doing with our time. but!! more importantly, consistently downplaying, discrediting, or speaking over the lived experiences of the most affected or multiply marginalized is only making it worse. she keeps framing this as an oppression olympics problem, but from what i can tell it seems more along the lines of lateral ableism and representation. if anything, her take mostly seems to come from a place of relative privilege (in terms of how her disability presents, as well as any racial/class/other social factors that may come into play)
2025-08-27 05:44:10
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Dee :
Thank you, this is the best take I've seen on the topic so far. I felt torn both agreeing with the ableism but recognizing degrees of disability
2025-08-28 05:46:58
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foolish Alien ♾️🌈🦈 :
I thik disabilety hiarky should be understand in the context of within one disability. Like blindness or autism. Not putting difrent disablietis up against one a nother. Like somone with level 3 autim need more help and should hav first go on specl ed serveses than somone with level 1. But putting difrent disabilety up against one another feels wrong. U cent see how sever somons dyslkia is compared to somon in a wellchair. Somon with sever dyslekia might never drive or Ned help with baski reding like menus and might not be able to do a lot of work. Or take public trnspor. Red medical documents or legal documents. Even tho dyslekia doesn’t seem that disabling on th ouside it can be very inpaktful. While somon in a weelchair ther disabliety is more emidetly obvious. Dot men it’s more disbelig. But I agre with th use within one disbilety. Like mild dyslkia vs sevr dyslekica
2025-08-27 21:26:34
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🪴 rhea | Spice of Life 🪴 :
I wish I'd seen the original video because its hard to form an opinion without the original
2025-08-27 17:18:13
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finalgirlgutsart :
it’s just a fact that some people struggle harder and need more aid/help than others of us i don’t understand how that’s invalidating every struggle and all pain is valid someone hurting worse doesn’t mean you’re not also hurting
2025-08-27 21:26:13
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🐁🌕Pineapple👁️📼 :
Even within illnesses or disabilities there are wildly varying degrees. Like I have a mild form of MCAS and it’s disabling but can be controlled with meds and lifestyle changes for the most part. Tho it’s still taking up most of my life. Others can only eat a few foods or can even die when their symptoms are triggered.
2025-08-27 17:52:46
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Madi :
Yes! At times I am more disabled than others. My endometriosis came back and found out to be stage 4 (deep infiltrating) and it was impacting every aspect of my life at that point on top of being a mom. This year I’m not disabled in that way but can be at any time.
2025-08-28 02:23:42
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Kittens and Chaos :
It’s not useful and doesn’t capture the whole picture. Needs to be redesigned
2025-08-27 18:41:50
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Catch :
Okay but what in case when depressed person can’t even move from bed, and other person without legs can go to school and live alone? I think it’s very individual how disabling certain problem is for that specific person, no?
2025-08-27 16:54:12
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