@kellyandfa13: Do I drink with a rare neuromuscular disorder? Short answer: yes Long answer: yes, but with so many caveats. Alcohol affects me and my body so much faster than the average person. Long gone are the college days where I could do whatever I wanted. Enjoying a drink or a few is mostly a social thing for me. I have so many things to keep in mind when I want to indulge even a little. First and foremost, safety always comes first. Do I trust who I am with? Is it an environment where I can go home easily? Is there an accessible bathroom nearby? My balance and coordination is already very off, so when you add alcohol to the mix, it’s not ideal. I have to be smart and know my body. Even a tiny bit of alcohol makes me groggy the next morning, so I need to make sure I have nothing going on and it’s not going to impact the next day. All of this being said, I definitely enjoy indulging from time to time, but I know I don’t absolutely need it to enjoy life and my friends. #MansBestFriend #raredisease

Kelly and FA

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Wednesday 03 September 2025 15:26:36 GMT