@avaonofreo: PNES storytime while i decorate my seizure helmet 💞🤕 #pnes #seizures #fnd #fndawareness #invisibledisablity

AVA 🦋
AVA 🦋
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Region: US
Friday 05 September 2025 01:29:05 GMT
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haulz_by_moni
haulz_by_moni :
How do you drive?
2025-09-09 12:48:03
2
lisa_leedle_le
lisa_leedle_le :
I have PNES, POTS. And FND I am finally getting occupational, physical therapy, talk therapy and seeing neurologists
2025-09-19 05:32:28
16
ninav423
Kristina Solli Veill :
You are so brave for doing this! This is going to reach someone who needs to see this. You go PNES Princess!!
2025-09-05 22:13:20
6
bry4903
Bry :
loud and proud my girl ❤️
2025-09-05 02:23:25
1
maddycharette
mads :
Everytime I see your videos I can’t imagine what this is like. I am amazed by your resilience! It takes a different kind of person and your positivity radiates so much!
2025-09-05 02:01:16
14
shmorganberry
Morgan Mancini :
So proud of your strength throughout these past four years 🤍
2025-09-05 09:05:41
1
liviegirlb
Liv :
So extremely proud of you and how strong you are❤️
2025-09-05 01:41:24
2
tripl3xenn
Tripl3Xenn :
yaass pnes princess. had my first nuro apt today. looking at PNES and FND diagnosis as well.
2025-09-12 21:48:35
5
taylorplourd
taylorplourd :
Strongest girl ik ♥️
2025-09-05 02:12:52
1
chrisdsy83e
Christine :
You should get a special dog for your seizure. They would let you know
2025-11-18 14:18:25
0
lizzieeschultz
Lizzie Schultz :
Found you on my FYP after i was just hospitalized and diagnosed the last 7 days. I’m filled with terror and dread any time something flares or feels off. I hate this
2025-10-08 00:40:32
2
sortahealthyalexis
Alexis Payne | Nutrition Coach :
Amazed by your strength Ava! Thank you for sharing your story and experiences.
2025-09-05 11:34:48
4
archiesonnyandally
Archie, Sonny & Ally :
I love you bestie❤️
2025-09-05 11:56:49
1
klo225
kristinalo21 :
Love you sister 🥺🥹🫶🏼 ❤️
2025-09-05 10:41:12
2
katelynnnnnnnnn0
Katelyn :
❤️your bravery is unmatched beautiful girl
2025-09-07 22:08:57
2
starringvicc
V :
Sending you all my love
2025-09-10 20:31:07
1
patrickhofmann727
patrickhofmann727 :
Muss du der Helm immer und täglich tragen ?
2025-10-03 03:50:41
1
lisa_leedle_le
lisa_leedle_le :
The process is so frustrating there are days where I still hate how my body responds the movement disorders and the seizures
2025-09-19 05:32:57
3
recyclofigzmike
RecycloFigzMike :
every thing about u is so cute!
2025-11-12 17:21:33
1
itslewyn
DGJ :
My daughter suffers from PNES. This gives her hope
2025-10-31 02:57:22
1
_sandra_livinfortoday
Sandra-living for today :
Nurse here thanks for the EDUCATION I enjoy nothing more than hearing it from the patients perspective the auro portions specifically
2025-11-04 01:42:57
1
avaonofreo
AVA 🦋 :
i’ll do another video on FND soon 🤍
2025-09-05 01:35:29
2
awernicki
awernicki :
Hugs
2025-09-05 02:14:44
1
charles_white62
CowboyCharles💎 :
I'm going to talk to my Dr about my seizures
2026-01-28 01:25:17
0
lisa_leedle_le
lisa_leedle_le :
I feel a little better recently
2025-09-19 05:32:36
0
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