Stiff Person Suffering SPS
Region: US
Sunday 07 September 2025 19:08:35 GMT
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E :
I’m so sorry ohmygosh I feel like hospitals treat individuals with SPS like they do sickle cell patients :(((
2025-09-21 12:37:41
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Addicted_Ninja :
Sorry to be nosey.... what's the diagnosis process like? i get full body dystonia attacks and it's so very painful for days after i can't move on my own at all. This seems so similar 🥺
2025-09-08 00:58:30
1
Kasey :
i am so, so sorry. I'm praying for you. thank you for sharing this, I know it's at your most vulnerable, but people need to see what you're going through. and I get the anxiety over going to the ER. The way pain patients are treated is BARBARIC. I have chronic pain, and get kidney stones, so I kind of understand what you're going through, but not all the way, because you looked miserable, and the way your foot was cramping, just broke my heart. I can't imagine anyone treating you poorly at the ER if they saw this, but I know you come in saying you have a chronic issue and pain, and it's like a switch is flipped, and they're just awful. I am so, so sorry! I hate this for you!
2025-09-08 07:06:41
6
NashvilleGSDMom :
May God Bless You and Heal You! Please!!
2025-09-09 01:20:40
1
baby number nine :
oh no I'm really sorry you have to go through this. it looks painful. may I ask what your diagnosis is. my brother is a quadriplegic and he has similar attacks
2025-09-28 17:24:25
0
Jenn :
I get dystonic reactions from meds and it hurts so bad.i feel bad for you
2025-09-08 12:50:37
2
Erica :
I am so sorry you have to go through this🙏🏻🙏🏻
2025-09-07 23:10:51
2
Kim :
Bless her heart ❤️😞
2025-09-07 22:32:34
2
janetec63 :
This is so hard to watch...I wish I can do something to help. We the healthcare establishment has let her down because she would rather suffer than go to the hospital. I beg if you as a Nurse to change your attitude about people's suffering by becoming less judgmental and more empathetic.
2025-09-08 10:52:15
1
Ichooselife :
🙏🙏🙏
2025-09-12 03:46:53
2
Pretty like the sun :
🙏❤️🙏
2025-09-20 02:55:47
1
angi :
🙏🏼💜
2025-09-08 01:27:10
2
KatMelcher :
🙏🙏🙏
2025-09-07 23:01:06
2
Linda :
🙏🙏🙏
2025-09-07 22:42:56
2
Nicole Marie Marotta :
🙏🙏🙏🙏🙏🙏❤️❤️❤️❤️❤️
2025-09-10 00:54:28
1
Dori Lynn :
🙏🏻🙏🏻🙏🏻
2025-09-07 19:12:16
2
margarita :
💙
2025-09-08 21:39:35
1
Hippie soul ✨ 💛 ☀️ :
Oh friend I am so very sorry you have to deal with this. I can’t imagine. I’m also so sorry for all the a s s h o l e s that have been rude to you! This is heart breaking. 💔
2025-10-12 05:50:21
1
Trixie Pixie's Workshop :
You should ask your doctor for lorazepam. you can take two of them and it equals one 5 mg tablet of diazepam, except it will melt in your mouth and work between 6 - 8 minutes. If the spasms are happening for this long, you need to also ask about Valtoco. it is a nasal form of diazepam.
2025-09-07 23:51:15
2
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