@kessalyn.grace: Any time I post something about my health it is not only very vulnerable for me to be able to share my journey and connect with others but to record for my doctors. My recent hospital stay was a nightmare. I had 3 different medical "professionals" treat me like I am insane because they didn't believe me. There are far too many that are out there constantly breaking their oath to do no harm. Sometimes it's by actually hurting someone, sometimes it's doing nothing at all when they need something done (that is doing harm) and sometimes it is berating and belittling someone to the point that even they begin to wonder if they are crazy! I KNOW I am not crazy! I KNOW that what I experience is real! It hurts, it's confusing and scary. It's dehumanizing... the seizure in this video? As it may not "look that bad" to you, it was so painful for me! I also have the ability to cut out parts that I am not necessarily comfortable with sharing. Like the part where I struggled so badly for oxygen that I started gagging or the part where I completely drooled all over myself and almost peed as well. Being chronically ill is not for the faint of heart. And it's always the ones that could absolutely NEVER be able to walk in your shoes that feel they have a right to speak. It does not care the day, time, your age, the other stressors in your life. It is isolating, cold, painful, brutal.... I just hope that one day it will be looked at differently I do not want your attention or your sympathy . I want to be healthy! And the worst part is that no matter how much I take care of my body I will still ALWAYS be sick.... thanks for coming to my ted talk...#justkeepswimming #chronicillness #trainrollon🚂 #PNES #POTS #FND #ehlorsdanlossyndrome #seizures #spoonie🥄 #traumaticbraininjury #thyroidcancersurvivor #brainbleedsurvivor #zebra #chronicallychill

559

2025-09-10 19:06:06

To see more videos from user @kessalyn.grace, please go to the Tikwm homepage.