@purpledayss: #epilepsyawareness #seizureawareness #mentalhealthmatters #MentalHealthAwareness #qanda

Hopes Epilepsy Journey :

hi, our daughter hope suffers severely with seizures all day everyday,is on vigabatrin,clobazam, & keppra, have you had any experience with vigabatrin? we think it's affecting her eyesight and weight, appointment with neurologists next week to convince them to change it, also been in epidyolex and topamax but we got those stopped as seuzures went up x currently she has 6-10 everyday, hasn't missed a day without them since aged 3 months now 5 years! we're in Leicestershire UK x