@_parasocial_princess_: #heds #hypermobility #ehlersdanlossyndrome #dysautonomia #posturalorthostatictachycardiasyndrome #pots #chronicillness #doctorsoftiktok

Parasocial Princess
Parasocial Princess
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Friday 19 September 2025 01:34:50 GMT
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sevzipz
sevyn<3 :
IM SICK OF STUDIES COMING OUT SAYING THE SAME STUFF IVE KNOWN FOR YEARS.
2025-09-19 10:08:09
5727
g.gray
Kiwi 🇳🇿 :
Anyone get unexplained rashes? Severe itch and burn
2025-09-21 19:08:04
119
invisibledisability
💜🐧P E N G U I N🐧💜 :
I see Dr Collins May 2026
2025-09-27 18:53:00
0
treblemomof2
Oh well :
I have to think about breathing and sometimes I forget. I didn’t realize that was weird 😅
2025-09-22 13:44:38
313
motherof5dragons24
motherof5dragons24 :
not me just finding out that 80% of people with Fibromyalgia (which I have) have Dysautonomia, and I am also hyper mobile. so where do I go from here?
2025-10-01 18:02:51
0
lcry2021
Leighleigh :
So so many of us have reactive hypoglycemia and it isn’t fun either
2025-09-19 13:00:53
1243
oliviamajora
olivia :
is this why laying down feels so much better? like overall my body feels good laying down and horrible standing up
2025-09-22 04:21:31
597
emily.m.koscielny
emily.m.koscielny :
I’ve started wearing compression socks and OH MY GOD I feel more alive ??? Even just the smallest amount of blood flow back to my head makes such a difference
2025-09-19 16:39:59
557
watercolourferns
👑✨🍰Prince Zayn🍰✨👑 :
Does dysautonomia make you stop breathing randomly???
2025-09-25 01:30:56
4
jaxemily
Jax :
Does anyone else suffer with complicated or hemiplegic migraines?!?!
2025-09-21 03:58:45
14
spicysar0
Spicy :
Waiting for them to link Chiari and CSF flow into this
2025-09-19 22:04:37
127
sarabethboland
sara beth boland (remus) :
Is this why I associate wearing my super tight leggings with having a better day
2025-09-23 23:03:44
27
elizwayman
elizwayman :
I passed the tilt test, but I faint in my real life regularly.
2025-09-19 03:58:27
230
harmlesshobby
🄶🅁🄰🄲🄴 🔪 :
I think they need to look into the CSF pressure of people who have POTS too
2025-09-19 11:52:23
258
sarahpeeters88
✨sp✨ :
I started day brushing my face because of acne…. Tell me why my fatigue and brain fog also has been getting significantly better since…. Dry brushing inscreases circulation….
2025-09-21 18:38:38
41
mmmarissabru
marissa :
can’t wait for the CCI/POTS connection to be more widely acknowledged
2025-09-19 09:43:58
417
roselinds1991
RoseS :
Does anyone sweats like crazy? Like, unless you are in a fridge, you are melting and people look weird at you? (Head, face, neck, back, everything sweats). Also, what about getting dizzy and almost vomiting if you are a passenger (not when driving)? What about sleep paralysis? Anyone!!??💀
2025-09-21 22:46:30
39
elias.eclipse
elias.eclipse :
How do they test for autonomic dysfunction though?
2025-09-21 22:21:46
1
someguyinpurgatory
SomeGuyInPurgatory :
do we know if this sort of stuff similarly applies to hyper mobility beyond HEADS ? I've been getting more certain recently that I've got hyper mobility in the bottom half of my body and one of my shoulders and I feel like this would explain so much.
2025-09-25 01:46:33
0
theodoremcoffin
Theodore :
this makes sense, I got my hEDS dx from a neuromuscular specialist after getting diagnosed with neuropathy and dysautonomia
2025-09-19 02:26:34
118
midnight_prologue
The late night book lover :
so what about bowel cancer?
2025-09-22 05:24:05
0
b4nsh33.t34rs
Star :
CAN YOU PLEASE SOURCE YOUR INFORMATION BECAUSE THIS SOUNDS LIKE ME
2025-09-24 20:19:16
0
gt_the_gender_disaster
gt :
WAIT THAT EXPLAINS WHY I'VE BEEN HAVING MILD SEIZURES THAT WON'T SHOW UP ON TESTS!!!!
2025-09-20 09:00:50
1
soy.la.renacuaja
la.renacuaja :
wait— psychological seizures as in a brain arrhythmia?
2025-09-21 03:05:29
0
thismixeduplife
Sel Leigh :
people talk a lot about it but the tilt table isn't the only path to diagnosis for POTS.
2025-09-24 08:18:47
2
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