@thubbs1: Autoimmune disease doesn’t just hurt your body, it touches every part of life. Work, relationships, even the smallest daily tasks can feel impossible on flare days. 💙 There’s no cure, only management… but sharing our stories reminds us we’re not alone. 👉 How has autoimmune changed your life? #chronicillnesscommunity #youarenotalone #autoimmune #invisibleillness #autoimmunewarrior

Brianna | POTS & Recovery :

Every time I watch your videos, your voice is so calming, I can tell you’re an incredible RN. I was just diagnosed with fibromyalgia today after being in so much pain for a long time, and finding community feels so important because most people don’t understand. I had to call out of work almost every day last week, and my family doesn’t really get it they think it’s something I must have done. The fatigue hits just as hard as the pain, and as a parent, it’s tough because I want to do it all, but I simply can’t.

Lynette :

I'm so sorry love! but absolutely know the feeling! I personally was getting my bachelor's and had to put that on hold ( which I recently restarted). I had to leave a position in the hospital that was very rapid pace. I too had to change everyday tasks. It truly changes us as a whole but with time I believe we'll find what works for us best ❤️❤️❤

Susan Schaffler :

This is a wonderful discussion and yes- these platforms absolutely help us feel less isolated. My condition, which I am still unclear on, made it so I couldn’t lift my three year old. I slept at best three hours a night and took baths mid-night to ease the pain. Fear of the future was debilitating. I lost my job and couldn’t do many of the activities I relied on to maintain my sense of wellbeing.

Danielle-Chronic Pain Warrior :

It took me out of a full time career. It prevents me from socializing, shopping, thrifting, going to many events, spending time with friends

Abby Wilson 🎀 :

RA, lupus, fibro here, and cns vasculitis. Completely changed my life. I can no longer work. My kids suffer for it as well, because of low energy and my fatigue.

Sandra Ward :

Miranda Epling :

I have lupus and Sjogrens. It is so lonely. I have 3 grandkids and I feel like I miss out on things that require me to walk a lot and it’s sad. I always want to show up for them. It has affected my lungs. I get plurisey a lot have fluid around my heart and lungs.It helps knowing I’m not the only one.

Mary Harris :

What meds do you take this is what I have and have really suffer with it Thankyou

Leanne :

It has destroyed 3 careers and 1 career I worked hard to get my degrees and then another autoimmune disorder showed up and ended my absolute favorite dream career.

PeaceLoveSmile :

Lupus, hashi, Sjogrens - It’s painfully lonely.

sniper_elite :

sarcoidosis in '05', hemochromatosis in '19'= liver damage, CIDP '25'= fear of losing my job of 20 yrs and career of 38 yrs.

Mary Harris :

I also have Ra

Just Jackie :

I have found that people have disappeared, they don’t understand when you just don’t get better. I was also a multitasking, do everything for everyone and now it takes forever just to manage my own stuff. I am super grateful my kids were young adults when I got sick and had to slow down, they were able to get the mom I wanted to be.

Kim :

My quality of life has changed dramatically in the last year. My daughters and grandchildren want their Nana back. I don’t think I will ever be able to go and do as I did. I am an Emergency Room nurse for 30 years.

Danielle-Chronic Pain Warrior :

I may do a series on mine. I will tag you in them. Thanks for sharing yours.

TaniaLara👊🏼 :

Im so sorry 🙏💝🌷 fibro & CFS since 2004….live in Panama (it is hard as hell as the medical field is in la la land regarding these conditions) brutal 😓. Thank you for sharing!

breakthechainswarriors :

🥰🥰🥰

Freitas lan :

🥰🥰🥰🥰

theresaramirez49 :

🥰🥰🥰

leisalynne :

It’s a struggle daily. I do more than I should often and then I pay for it and end up on the bed for a few days. It’s a struggle. I finally had to stop working in 2017 and got my disability. That was hard !! I’ve always worked since I was 12 doing something. To look at me I look fine but I have so much joint and muscle pain and get inflammation between my ribs and lining of my chest wall that’s so painful. I don’t sleep good and have stomach issues so often. I now have fibromyalgia, connective tissue’s disease, hosimotios and lupus. Your videos help when someone else understands. Prayers for all 🙏

✝️💞Bobbi Jo💞✝️ :

I just say ditto 🥲