Evelyn Miller | Living MeSsy🧡
Region: US
Thursday 25 September 2025 13:14:30 GMT
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Kdr :
I was diagnosed 12 years ago. I was always prepared to lose my ability to walk. I was not prepared to no longer be able to understand what I read, lose entire days of memory and unable to make decisions. My neurologist said that by mid 50s it will likely mimic dementia. My OT said that I can probably keep my physical independence for a while but she is more concerned about my ability to be independent bc of the cognitive decline. it's scary and terrifying but worse than that, it is heartbreaking. I feel like I'm trapped and being held hostage in a body and a brain that is no longer mine.
2025-09-25 14:17:35
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kristinamariemoore :
Do you have any emotional dysregulation from it? I go to the doctors and I’m a mess. Doctor is like how are you doing and I just start to cry. I can clear it up in a minute or so but I’m just an emotional mess.
2025-09-25 21:24:51
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Forthelaughs :
This has been the hardest for me to navigate. I hate to say this but so much of my identity has been rooted in my intelligence and I’m currently a doctoral student and this is the first time I have EVER struggled in school and the stutter and forgetting mid sentence scare me!!
2025-09-26 19:25:20
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Michelle Ladd Sandbe :
I am 53 and have talked to my nuero about my cognitive decline at my last 2 appointments, first time he said it comes with age. 2nd appt. I basically told him I want testing for a baseline. They gave me a one page test and said I was fine🤬🤬
2025-09-25 16:13:18
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0dinne :
That’s happening to me and I live in my car. :/
2025-12-10 17:43:48
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Crunchy-Frog :
I laugh at myself at myself and say thank god im pretty😂😂
2025-09-25 17:15:43
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Bunn Haven ᢉ𐭩 :
Where do you see it the most?
2025-10-04 15:44:10
1
mimi_urban :
Completely can relate. I worked so hard for my career and education and Is one of my biggest struggles❤️🙏
2025-09-25 14:16:51
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Autumn15 :
I feel this so deep in my soul. I deal with everything you said all day everyday. It’s so damn brutal. Hang in there friend. We can do hard things. Praying for you. 🥰
2025-09-26 07:06:45
2
Candee Line :
wish I could share your videos to my stories. I relate to them so much!
2025-09-29 01:33:21
2
Teaha Petry :
Zenzedi saved my life! I couldn't stay awake longer than 30 minutes before I started taking it.
2025-10-05 20:53:54
1
Carrie Urquhart Helt :
I hate that I feel like I’m the only one. I hate being 48 and can’t remember things from that morning. I absolutely never wanted to be a burden to anyone but here I am
2025-09-25 23:46:44
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Jai Danielle :
Can I just ignore it? Act like it isn’t happening?
2025-09-27 12:30:27
2
Rev. Michael :
meh²
2025-10-17 19:59:53
1
Artsy_Angie :
🧡💗 My boyfriend and I both have MS and his is more Cognitive like your. I see you , you are not alone . Take yourself one moment at a time, wish you feel warmth in your soul knowing you are choosing gently loving kindness for yourself.
2025-10-02 05:34:48
3
Paige 🎨🧡 :
Cognitive decline effects me more than anything. I’ve been in cognitive rehab for almost two years and has really helped me adapt, self aware and accepting. It’s hard and it sucks💜
2025-10-24 05:46:59
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charmaine :
yesssss!
2025-10-07 19:33:18
2
kj338506 :
I was just let go because of that. It was really hard to mask it as an accountant. Starting the disability process now
2025-09-26 01:31:41
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Carolinagirl🌻🧡🧡 :
Yes girl I totally understand I feel the same way it makes me feel like same way 🧡🧡🧡🧡🧡
2025-09-28 03:19:56
2
Megs :
This is soo true
2025-09-26 13:26:59
2
jettiemp :
I do not have an MS diagnosis and am being treated for “early lupus”. I relate to this so much. Last week I couldn’t think of the word TOMORROW! I just think MS fits my symptoms so much more than lupus.
2025-09-26 15:22:38
2
ResilientArts :
going through all the McDonald's criteria now. I stutter and have all those symptoms. do u get disability for this. I pray I don't have to go on it. i love my job most days
2025-09-26 04:07:27
2
Pistachiohan🧡 :
The brain ain’t braining like it use to :(. I feel like I just go blank all the time, especially when someone asks me a question I wasn’t expecting or sometimes I can’t form a sentence or get the words out correctly or I say the entirely wrong word than what I wanted go say.
2025-09-25 20:56:32
3
Dana Lane875 :
It’s bad😞😞😞😞😞😞
2025-10-01 15:00:35
2
claws2004 :
I feel 100% the same as you do. I miss the old me 😔
2025-10-01 15:41:58
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