@mmadrigallsresearch: Scalp pain in EDS isn’t ‘just sensitivity.’ Loose fascia, poor circulation, MCAS, and fragile skin all make brushing your hair or wearing it up feel painful. #ehlersdanlos #chronicillness #connectivetissuedisorder #scalphealth #fascia

Living Signal Research
Living Signal Research
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Monday 29 September 2025 00:22:03 GMT
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triceratops429
Laura 🦓♾️🐙🏳️‍🌈🍉 :
I’ve been saying my hair hurts since I was a little kid.
2025-09-29 04:19:45
928
xo.dun
dun :
I swear, even if one hair is going the wrong direction my whole scalp starts to hurt because of it! I hate it
2025-09-29 01:50:57
402
mmadrigallsresearch
Living Signal Research :
Does your scalp feel bruised or sore?
2025-09-29 00:24:12
410
chronically_chill_gal
Destany🍉🦓 :
Ugh of course it’s my EDS💀
2025-09-29 00:30:14
232
rachcha2451
Rachel Chacon :
Is this why my eyelashes hurt sometimes lol
2025-09-29 03:11:18
190
bosshaspaws
BossHasPaws :
Oh my god… that’s whyyyyyyyyy 😳 i can’t tie ponytail any higher than the bottom of my neck and that too have to be loose.
2025-09-29 04:25:10
31
antholagnia
Ya hairy fairy 🧚 :
Yessssss, happens to my brows too if I sleep in my side and they get smooshed in the wrong direction lol. Same with my leg hairs if I wear tight fitting socks or leggings 😭
2025-10-04 09:40:57
31
marvel_3s
marvel_3s :
How much does a typical person’s scalp move? Is this not normal?
2025-09-29 00:32:00
51
cheesycrunchychupacabra
CheesyCrunchyChupacabra :
I can’t stand to brush my hair when I’m sick, it always hurts so bad!
2025-09-29 01:45:28
78
wtchybtchy69
wtchybtchy69 :
tell me I ain't the only one to test if their scalp moves🤣
2025-09-30 01:52:29
13
yourfriendinmichigan
1bluebutterfly :
My hair always hurts. Yes I know normal people think I’m crazy.
2025-09-29 23:08:54
13
laurenmassman15
Lauren! :
My scalp is loose like this! Never knew it was connected🫢 is there any connection between tingling under the scalp and EDS?
2025-09-29 00:42:29
20
simplyanotherartist
Shannon Slabaugh316 :
so that's why putting anything on my head/in my hair will cause headaches? I just wanna feel pretty than just having my hair down all the time 😞
2025-09-29 05:50:16
5
manicpixiemeansquirrel
Elegy MTG 🎨 ♾️ 📚 :
wearing Bobby pins leaves touchy spots.
2025-11-20 15:54:43
0
brunellesp
BrunelleSP :
can't even wear a ponytail.
2025-09-29 14:28:29
13
karin.1903
karin 🌈 :
it feels like someone is pulling my hair thight. but also like bruises. i always felt "hair pain" even as a child. and my hair washing means a blowout cause curls feel too heavy.
2025-09-29 12:23:30
13
hooman.like.people
Hoomanlikepeople :
the amount of times I've said "my hair hurts“ or times i can't wear certain clothing on some days cuz my skin is like Nope
2025-09-29 00:47:44
16
user35750093495207
user35750093495207 :
My scalp is so sore all the time. And itchy
2025-09-29 01:19:03
8
moriarty881
Moriarty :
My ears feel like this
2025-09-29 01:34:53
9
vaab2
vaab2 :
Is this basically allodynia? My neurologist was just telling me about this because I really get it around my migraine attacks but I didn’t know it could be more common because of EDS
2025-09-29 02:00:48
12
volynicks007
It’s me :
Is this why my hair is falling out?!
2025-09-29 02:34:21
7
beccachristy
Becca Christy :
Is this why I find that most showers have too much water pressure for me?
2025-10-01 14:11:56
0
sasslyssa
SassLyssa :
I used to cry when my mom would brush my hair and she just thought I was extra sensitive
2025-10-31 07:10:11
0
elizabethmargaret.83
Lilybet83🇦🇺⋆.˚🦋༘⋆🇵🇬👒🥄🌻 :
only comfortable hairstyle for long term is a French braid
2025-09-29 07:17:14
3
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