Dr. Grace | hEDS, pelvic floor
Region: US
Thursday 02 October 2025 01:57:40 GMT
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Nikki_the_physicist :
For anyone else who dislocates/subluxes their patella: get a compression knee brace with a silicone "donut" where your patella is. It will help keep it in place. 😊
2025-10-02 02:14:01
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Ivan // Søl :
My doctor said I shouldn’t use braces so I don’t become dependent, I’d love too but I need them to ya know function
2025-10-02 11:01:12
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tired.alchemist :
I wear birkenstocks around the house instead of being barefoot, they're my indoor slippers. the cushion from the cork sole is a game changer
2025-10-02 07:31:12
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sirenatheodyssa :
My struggle is being plus size. I’ve never found a knee brace that doesn’t roll down off my thigh.
2025-10-07 00:21:31
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Nebulatron :
Yet my pt is always telling me how much she doesn't want me using braces, since they're going to make my muscles weak.
2025-10-02 17:44:48
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Asher🦉 :
my dad keeps telling me it will make my muscles deteriate SIR I NEED THE SUPPORT 🥀💔
2025-10-04 20:23:25
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cassie :
do you have any videos about Braces and compression garments for shoulders? my shoulders are constantly slipping, its so painful to move my arm or try to lay down or sit without it slipping
2025-10-02 02:07:44
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The Patellar Tracker :
If you have knees that frequently subluxe and dislocation try a J pad brace! They’ve helped me keep my knees in place during activity and in daily life.
2026-06-27 16:27:01
1
Hammad Mir :
any recommendations for a knee brace that's open behind the knee. normal ones get really uncomfortable, especially since I injured them a while back and apparently my ACL is stretched! 🤷🏻♂
2025-10-02 08:46:03
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Becky Lenning :
Do you have any recommendations for floating ribs that always feel like they are out of place/digging in?
2025-10-02 19:45:51
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◯ ‸ ◯ Modern-Mavis ◯ ‸ ◯ :
Question: for me the worst area affected are my hips like where my femur joins my hips- what can I do for those cus I doubt there are shorts that are like a knee brace for hips-
2025-10-02 04:22:56
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dest :
so should we be wearing braces all day or just if we’re up and moving a lot? I’ve seen that for a normal person wearing a brace too much can actually cause damage but idk if it’s the same for EDS. I’m scared of wearing my knee braces too much since I already have so much trouble with them 😩
2025-10-02 22:15:57
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pingu :
i’m really struggling with my fingers at the moment, they won’t stop dislocating. I’ve had my dad make some wire knuckle splints but obviously i can’t really do anything for the knuckles that connect my fingers to my hand. Does anyone know something that may help? I’ve been to my doctor and sadly they could not care less🥲
2025-10-02 09:49:04
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antareswithalibrary :
the problem is I also have autism and dysautonomia, and anything tight against my skin makes me want to rip it off because I always overheat way too quickly! it's literal hell!
2025-10-03 03:12:33
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Rose Benton :
my issue is that my knees are super unstable but my thighs make the knee sleeves super uncomfortable if they stay in at all. they roll and they make my skin hurt
2025-10-02 03:13:17
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Sadoris the Tiefling :
I just got diagnosed with heds 2 weeks ago. I was told all I can do is take Tylenol when the pain is bad. thank you for showing me that physical therapy for this exists
2025-10-02 02:58:03
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Allie May :
I’m a flight attendant do you have any recommendations for arms/elbows? Lugging suitcases across the airport is taking its toll!
2025-10-22 13:07:48
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🩺 KATELYN 🎀 :
Hi, PT here! KT (Kinesiotape) can be a much better option. It’s obviously less bulky, therefore better with most clothing options, and many brands sell pre-cut strips for specific body parts to make it even easier. Plus, it can stay on for multiple days and is waterproof! ((Zoom in to see me using it on my knee at the pool))
2025-10-04 15:31:57
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Jax :
i need to actively remember that "not expensive" coming from an American has a different meaning
2025-10-03 23:07:20
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Lilith B. Sanders :
what if knee braces genuinely don't help?
2025-10-21 03:17:23
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A profile :
How do you support not hyperextending your knees when asleep? I wake up in a lot of pain as my muscles are tensing on and off all night pulling my feet off of the bed
2025-10-02 22:15:39
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Ꮚℍ¡ᙏᔕ⟟☾aͥ̆𝕷 ᕔϰᵃ☈☪︎♓︎✌︎ 🚫🧊 :
Stability shoes, like the Cloudflyer by On Running, has been the biggest game changer for my stability in my whole body. I HIGHLY recommend them. Expensive, but medically necessary for me! ❤
2025-10-03 17:14:03
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kiyo :
any support for the pelvis area please they just kinda shift around when I stand from a sitting position😭
2025-10-04 03:51:34
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QuantumGalacticWitch :
What’s the brand of knee sleeve? I have some but I’m curious plz
2025-10-03 09:35:14
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Dani :
What can I use for lower back? I have 3 bulging discs now 😭 gunna do pt again but I also sit for a good chuckle of my job. Normal belts just slide up to my mid section/ribs
2025-10-16 03:41:38
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