@annapaigemorgan: GUYS I have 2 confirmed dignosis + 3 HIGHLY suspected dignosis all because I pushed for a doctor who would listen! Update coming soon im still shaking from the news & 10 blood vitals LOL#heds #autoimmunedisease #chronicillness
Same thing! It took going to MULTIPLE specialists and finding being accepted to Mayo Clinic to receive MULTIPLE diagnoses. As soon as the doctor walked in he said he knew what was wrong with me, after 8 years I finally have a treatment plan
2025-10-10 22:22:16
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julia :
does anyone know a doctor near the myrtle beach, sc area?? please I've had the same back cramp for over a week I'm so tired.
2025-10-10 23:54:59
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dani :
this is crazy!!! i wanna know what he said!
2025-10-11 01:44:26
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🌺🌊 ling :
how did you find a hypermobile specialist?
2025-10-10 21:33:01
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Daylin Rae :
I was in car accident and FIVE doctors cleared me for work. Kept searching cus the pain was horrible. Found a doctor that listens, and I get surgery on the 21st. My accident was LAST November. Time off of work and restrictions at work would of prevented surgery and the next 5 months off of work at 65% pay. (which after taxes, insurance etc is like 20 percent lol) So yay, me.
2025-10-11 01:39:45
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Lindsey Baker :
I just self referred to Mayo this morning because I'm exhausted that my 10+ doctors here won't acknowledge the issues I'm screaming for them to look at...HEDS is one.
2025-11-04 17:55:40
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nmarie2022 :
Need to fine better rheumatologist… mine stated just treat my symptoms not my cause? 🤔
2025-10-11 00:16:12
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an optimistic pessimist :
most rheumatologists are horrible.
2025-10-12 00:38:22
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Belinda🖤 :
I desperately need a hyper mobile specialist in NJ
2025-10-10 22:50:28
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Justi Conner-Fair :
I have my genetic testing results confirming 3 types of EDS but my rheumatologist says it doesn't matter. 😩
2025-11-11 09:34:34
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Rod :
Finding a good rheumatologist is like hitting the jackpot, so happy for you! I’d love to get answers
2025-10-12 18:48:10
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GLOOD :
2nd options should never be guilt tripped. glad you're getting the help you need.
2025-10-11 00:58:56
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Skye Polk 💜🦋 :
So glad you got another opinion! Same thing happened with me. Third rheum finally diagnosed me with lupus
2025-10-10 19:49:46
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🐌Beth🐞 :
My second opinion saved my life ! I was told I had an eating disorder and it turned out I have SMAS ! And now gastropresis !
2025-10-10 19:33:11
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Cospop! :
the first orthopedic surgeon i went to said that me dislocating my knees would get better after puberty and that i didnt need surgery. the second orthopedic surgeon i went to 4 years later immediately suggested surgery because he saw how i sat on the exam table and clocked me sitting with my knees facing each other
2025-10-11 03:57:41
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Priscilla :
Im glad your got your diagnoses
2025-11-24 21:49:34
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AJW0407 :
😂😂😂
2025-11-02 03:27:44
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DJ :
You can be hypermobile and not have EDs. So you’re saying you have hEDS ?
2025-10-11 07:01:10
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