my 15year old daughter also has dravet and her seizures start the exact same way head turns to the right 😭 it's a never ending fight we're fighting with no reward at the end 😭😭😭😭❤️❤️❤
2025-10-14 08:19:06
10
Jules 🇦🇺 :
It breaks my heart that she’s missed her Kinder joy waiting for that training :(
2025-10-13 22:56:15
56
maddy :
Seeing her little wings beginning to shake is heart breaking. 😭
2025-10-14 00:57:24
285
Aimz 💜NOTTODAYDRAVET💜 :
The way you so effortlessly lifted that playpen shows your strength. Proud of you. 💜💜💜💜💜
2025-10-14 00:26:47
150
Medical Mumma :
I’ll add before it gets questioned- Everly likes being in this enclosed space with a blanket over top, this helps her sensory input. But we need to be able to see her at all times so a sheet/blanket over top is the best of both worlds. She is free to enter and exit as she pleases.
2025-10-13 21:48:57
412
Ceri Scarlett'Noah S :
YOU miss lady are are amazing! Yeah YOU! it makes me cry a little when i see these videos and how fast you react because she needs YOU! GO Mama we see YOU!
2025-10-13 22:40:37
75
Annabel💖 :
what an awesome support worker!! You both noticed IMMEDIATELY and both took your roles
2025-10-14 10:29:33
12
littlecyn :
her support worker and you so quick to action. do you do a debrief with support workers after hardship days? I am wondering if we should allow time for this when we get support workers in home
2025-10-14 01:25:42
59
Hallye 💜 :
This is so incredibly emotional….just seeing the reaction time and her sister being right there to catch her and her little wings……keep fighting Evie! 🦋
2025-10-13 22:28:02
25
Homebird08 🇳🇿🇬🇧 :
What a team you are Brooke, your girls, and you, and your well chosen care workers all coming together to meets the lows and, when life allows, celebrate the highs. May the highs outnumber the lows and may your strength be there when you need it.
2025-10-13 22:24:44
10
Britt Sugar :
every time i see your videos i am just so proud and amazed how your so prepared and fast!! - from a paed nurse that worked with kids with Dravet syndrome
2025-10-14 06:19:14
119
Courtney 🪬 :
You miss are just absolutely amazing, my daughter was just diagnosed with epilepsy and I have no clue on how to navigate absolutely anything, but seeing how strong you are has given me so much hope ❤
2025-10-13 23:06:01
7
missdanikamaree🫶🏼mummaof4❤️ :
the response time never fails to amaze me ❤❤ as a mum I would be a absolute mess
2025-10-19 23:44:10
3
Ellie_Galaxy_ :
You are amazing ! Remember you were made to b e’s mumma big cuddles
2025-10-13 21:49:26
6
Paula Beardsley :
Is eveie ok
2025-10-13 22:49:38
1
Sezzy 🐝 :
You’re so strong 💖
2025-10-13 22:03:05
7
Shantel Kira :
So do you get 24/7 support workers? This is so scary but how you both sprung into action without missing a beat is beyond amazing. ❤
2025-10-16 08:19:13
1
brittanymichelle :
Oh my love, you moved so quickly.. If no one has told you today, I’m proud of you. You give fear no time to set in. 💪🏼
2025-10-13 22:05:08
9
ƈơơ℘ɛཞ ʂɛ ۷ཞơųɬʝıɛ 💜•• :
God chose the best mother for her ♥️
2025-11-30 13:07:20
1
Lovey💞 :
What a great team.
2025-10-14 04:05:10
2
Inksane_mj :
these videos always brake me brooke you are an amazing woman I couldn't do what you do your so strong I hope evie is doing ok give ur self some love mama ❤
2025-10-13 22:12:24
1
notyours_ :
I whole heartedly agree with every word 💔
2025-10-13 22:58:08
2
blah :
props to you and her support worker both of you remaind so calm & just got shi* done 💜
2025-10-13 21:58:54
4
Caitlin.Nickface :
The way you and your support worker jumped into action was incredible. No matter what Ev goes through in life, she has an endless supply of love. I hope both you and Ev are doing ok 🖤 #nottodaydravet
2025-10-13 23:12:03
1
tallgurl69 :
Stay strong, keep fighting for your child
2025-10-17 05:59:11
2
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