@enzogiofurever: Just trying to find anyone out there that have this genetic disease HHT. #fyp #foryoupage #hht #hereditaryhemorrhagictelangiectasia

Bobbi Mejia
Bobbi Mejia
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Region: US
Saturday 25 October 2025 01:55:55 GMT
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novainen
Nova🤍 :
Hi :) I have HHT too. If you want we could talk about it, and share more about our experiences. For me it’s really hard that no one really understands me and I can’t talk about this to anyone. I have Avms in my lungs and it really sucks :/
2025-10-28 12:04:29
3
carolinav
Carolina V :
Hello, I have hht as well. I’ve been through 7 pulmonary procedures to coil my avms. Hang in there, it will get better ❤️‍🩹
2026-01-28 08:00:58
1
lj_01_15
LJ :
Hello, I do.
2026-04-05 03:48:14
1
moo7273
Coco de Guaynabo :
Hi Bobbi. I am so sorry 💙💙💙I love you
2025-10-25 02:03:35
1
nicole_b1955
Hakuna Matata :
Sending prayers 🙏🏽 and love ❤
2025-10-25 11:24:50
2
tatiy.lee
Theylove.Tanayaa :
My mother has it in the liver. She has constant iron and blood transfusions. It’s been a very long journey….
2025-12-08 06:05:48
1
nrosi75
🇵🇷 NEL 🇵🇷 :
Love you sis!! I pray you find answers!!
2025-10-26 03:27:37
1
debfrenchmcelfish
debfrenchmcelfish :
Sounds scary honey, warm hugs
2025-10-25 05:30:54
2
nflchick
Wennita Reed :
I have it as well. 😭
2026-03-06 15:25:13
0
missyg2020
Missy :
That's stinks. ♥
2025-10-25 02:38:47
1
neciem
user9491342954884 :
💜💜💜Prayers.
2025-10-25 02:07:59
1
loopnlu1
HHT WARRIOR ❌ :
I feel your pain. I hv it too, I have 6-8 nosebleeds a day, 6 nose cauterization, infusions of iron and Avastin every month, 3 PAVM's (coiled), blood work every two weeks, Severe anemia requiring hospitalization. Nothing in my brain. Can't work anymore. 13 years of this, ugh.
2026-04-15 04:11:11
1
kell.quinn
Kelly :
I have it too😢😢daily nosebleeds after multiple cauterizations and lasering as well.
2026-03-13 06:42:01
1
imagoooodladie
Imagoooodladie 🙃 :
♥️♥️🙏
2025-10-25 05:48:31
2
pawsnlove
PawsNLove :
Praying for u Bobbi as I’ve been follow u for a few years .. we are fellow Yorkie folks
2025-10-25 05:14:25
1
sillyglamma
Vicky :
Hi there, I'm sorry to hear about your illness. There are clinical research trials throughout the US to test new generation of existing drugs. Google a study for your area, Worth a shot to get treatment and more information about your condition.
2025-10-25 02:22:49
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