@annapaigemorgan: Another diagnosis Hypermoblie Ehlers Danhlos Syndrome #heds #mcas #pots #chronicillness

Anna | Starting Over At 30
Anna | Starting Over At 30
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Region: US
Monday 03 November 2025 19:16:20 GMT
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krjara
Kayln :
I actually am getting a biopsy done on Friday by neurologist to see if I have SFN. I have hEDS, POTS, and Sjogrens as well
2025-11-03 23:06:45
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sewstratton
sewstratton :
Endo And MCAS are related too. You can always call me if you need friend
2025-11-04 02:24:36
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_ashley_nichole_
_ashley_nichole_ :
I need to see the rheumatologist
2026-01-12 06:31:07
0
jordaningle286
Jordie :
Who did you see?
2025-11-04 11:58:17
1
ihatechronicpain
dani :
a peripheral neurologist who specializes in sfn will be best. it’s testing w biopsies but also autonomic testing which sounds like you’ve already had some
2025-11-05 06:48:48
0
greycheddarluna
Greycheddarluna :
Hạnh phúc là biết đủ và biết trân trọng những gì mình đang có.
2025-11-04 06:07:42
0
sewstratton
sewstratton :
Welcome to the club :(
2025-11-04 02:23:29
1
lookeyloo82
user2088633712907 :
Could be on the Autism Spectrum as well
2025-11-05 05:58:18
2
kylee_cav
Kylee (Taylor’s Version)🪩 :
My rheumatologist diagnosed me with hypo mobility,crps,amps and fibromyalgia her and my cardiologist said I have hEDS but when I went to genetics apparently I’m not hypo mobile just bc my elbow don’t turn up and my thumb doesn’t touch my wrist 😭 yet I can do everything else and all the other symptoms. I suspect I have mcas. I also have pots and gastroparesis and severe migraines. Which I was born with
2025-11-04 15:09:31
1
brittanydd21
Brittany :
Hi! A neurologist will diagnose SFN!! Usually will do a biopsy to diagnose and in office!
2025-11-03 19:42:07
1
margaretsoleil
Margaret Soleil :
My voice used to fade mid-sentence. With @Prime Wellness (The Herb Bar) my speech feels clearer and more stable. People understand me again.
2025-11-04 06:06:48
0
crispy_777
🌈 🦖 Crispy🐿Critter 🛶 :
You should get genetic testing to rule out the more serious type
2025-11-05 10:48:34
0
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