lilly downs
Region: US
Tuesday 11 November 2025 22:13:21 GMT
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em :
this gives me so much hope
2025-11-12 08:22:06
119
Emily :
Prioritizing social plans & my emotional/mental needs over medical appts & social media was the best decision I’ve ever made. It’s inspiring seeing you do so well!! Others need to know that getting better, despite no cure, is possible 💗
2025-11-13 18:55:24
35
Angèle ⚯ ͛ :
So ur gastroparesis is completely gone and fully healed ?
2025-11-12 00:47:19
15
Laura J :
What is the difference between the J Tube and G Tube? I thought they were the same.
2025-11-12 03:01:57
1
Chloe :) :
This is so so important, thank you for sharing. I am so proud of you, I know how hard this is.
2025-11-11 22:46:27
66
elle ☮︎︎ :
this gives me sooo much hope
2025-11-11 22:23:57
78
𝒮𝓎𝒹𝓃𝑒𝓎🎓🇨🇦👩🏼🍳 :
To make a long story short I have been very very dizzy, pale, shaky etc and having some difficulty w my heart. I got an mri and my doctor wants me to get tested for pots, tbh I’m so anxious and nervous I just want my life back it’s been so frustrating w school and finding a job!
2025-11-13 01:04:22
4
Giulia :
sooo happy for you. you give me so much hope💗
2025-11-11 23:54:28
5
fatma 🫶 :
so happy for you ❤️would you be comfortable discussing more about if ivig/scig played a role in your condition improving too?
2025-11-12 18:42:41
9
Selah Hoffman 💖💖 :
yipeeeeee kai yayayayay
2025-11-11 23:01:26
0
ana_maria :
I’m soo excited for you!! 💜💜 thank you so much for sharing these milestones as this helps me know that it is possible to get to this point! 🥹❤️
2025-11-11 22:40:12
7
Sophie Harris :
so proud of you and rooting for you always Lilly!
2025-11-12 04:10:18
4
Kim Trautman :
it’s so nice to know that achieving these milestones IS possible! thank you for sharing! and thank you for all of the raw and real videos you have previously shared!
2025-11-11 22:32:51
34
Jazzy Rae♡ :
Learning to detach from chronic illness (even though we deal with it every day) is SO crucial for healing. I honestly think that is what helped me get rid of my feeding tubes to some degree. Obviously I’m still on a lot of motility medications but keeping medical stuff away from my social and every day interests helped so much!! 🤍 beautifully said and I’m glad things are a bit better
2026-02-05 21:19:22
3
Stephanie :
What type of immune help are you on? I noticed you had a bottle of some type of supplement. I have gastroparesis, but I also have a birth defect that makes it so I aspirate every night so that’s why I have a G-tube and I have a lot of immune issues also with dermatomyositis And I just never know what to take extra on top of my medication‘s cause I don’t know which ones to believe on what they do in all of that so any help with that would be greatly greatly appreciated
2025-11-12 04:50:05
8
persian🦁🦁 :
so i guess soon no more what i eat in a day with a paralyzed stomach i hope
2025-11-11 22:57:28
11
Ashley :
sooo happy for u and proud of u. u have worked so so hard to get to this point🤍
2025-11-11 23:46:16
7
jade ;) :
So incredibly happy for you babe you are fucking glowing!!!
2025-11-11 23:54:54
25
Kim :
thc.
2026-01-19 00:55:13
2
Yuths🇵🇸🇨🇩🇸🇩 :
Started watching you such a long time ago and hearing these updates is really amazing!
2025-11-14 23:31:10
2
scout :
yasssss queen
2025-11-11 23:19:01
3
marahoot :
yay !! so proud of you
2025-11-11 22:20:47
3
Kyleigh :
I’m so happy for you!! Also, if you don’t mind me asking, do you have an underlying primary immunodeficiency? I’m just curious because I know you said you’re on SCIG ❤
2025-11-12 23:56:55
1
Caitlin Persephone :
I am happy for you 💗 amazing progress
2025-11-12 13:19:43
1
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