Terry 🌸
Region: US
Thursday 13 November 2025 21:10:47 GMT
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savannah⚡️🍒🖤 :
Can you get a full body MRI? also like the other person said, check for a CSF leak.
2025-11-13 21:13:49
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madi 🕷️🎱🍒 :
Does the sound of your own voice hurt too??
2025-11-14 01:56:31
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cumbawlz6969 :
i wonder if you could live somewhere nearby a community with older people / senior living if possible - quieter but medical care is easily accessible and caters to that area. i know moving would be awful though. sending you well wishes 🫂
2025-11-13 22:40:19
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v.222210 :
A sedated/put under full body MRI!! There has to be an answer! You can be put under fit this!
2025-11-14 02:52:25
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El o el :
See if they can kill the nerve, they have special testing to see which nerve is damaged and they can kill the sensation, rule out anything dangerous first because when the nerve is dead you won’t feel if I gets worse
2025-11-14 01:27:06
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Alexis :
hi!! I'm a nurse and just watched your last few videos I'm so sorry you are going through this. have you tried to talk with your physicians about getting home health care infusions and dressing changes to avoid having to make that drive each week?
2025-11-14 01:47:48
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TWEETYMLR :
I too have Gastroparesis, Occipital Neuralgia, and had a CSF leak which is what I’m 99.9% sure what you’re dealing with. I’m a nurse I’ve seen it more times than I can count, and experienced it myself. Please get a second opinion, it’s life changing 🙏
2025-11-14 16:15:55
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Audrey :
Are you sure your issues aren’t from mold? I know you said maintenance is coming to fix a major leak. Are you sure the sound sensitivity is from the acupuncture? Not trying to be annoying. I have some severe health issues as well
2025-11-14 02:57:03
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Tavia NT :
I see people giving you good ideas or things that have worked for others w your exact condition but you don’t respond to them.
2025-11-14 10:57:19
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Gessie ❤️🔥🇵🇦 :
You have gastroperisis ON TOP of THIS??? I am so sorry, I know how debilitating gastroperisis can be!
2025-11-14 12:32:24
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alexis🕊️🇻🇦 :
could you advocate for home infusions? I am tube fed and i know it’s different from IV infusions but I was trained to use all my equipment at home and change my G tube at home as well. I know a lot of people who do at home infusions, TPN, and other intravenous treatments at home.
2025-11-14 01:18:33
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Rhino :
Did you see my comment about mold
2025-11-14 01:49:16
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Dánhattanproject🇮🇪 :
You need to have a sedated MRI. My Chiari was just like this
2025-11-14 02:50:52
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Leah | SAHM x 2 💗💙 :
In the country, you would get home health and they come to your house.
2025-11-14 01:58:57
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alyssawytanis :
Saying so many prayers for you i am so incredibly sorry you are going this and you will NOT feel this way forever
2025-11-13 21:18:30
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saddleandpaws :
Home health could do your infusions and dressing changes
2025-11-14 02:05:59
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Abigail I :
i think an ear doctor might be a good idea, i saw it another comment on other video, just wondering if you aren’t producing ear wax or there’s something going on with your sound barrier.
2025-11-13 21:27:00
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julia :
i really hope this isn’t insensitive, and i’m genuinely asking. do you think getting the same acupuncture treatment that caused this, might reverse it? i know it’s a silly question, but maybe it would be like a neurological switch? i’m so sorry you’re dealing with this.
2025-11-13 23:55:00
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Bridget :
Have you tried nerve blocker shots ? My migraines weren’t as severe as yours but I had migraines daily for a year that came with INTENSE vertigo. It took 3 rounds of those shots + migraine meds ( rizatripton ) to go 80% away
2025-11-14 00:24:49
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Adia.Isaacson :
I know you said induced deafness isnt an option but Im wondering if they gave you a reason as to why? if it would significantly improve your quality of life i cant understand why they would deny you of that
2025-11-14 00:22:02
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Kaylie | Content Creator :
hello beautiful girl! i’m so sorry for commenting as i’m sure it gets annoying! but have your doctors thought of the possibility of if your acupuncture needle was possibility contaminated and maybe it’s causing some type of severe untreated infection? i just watched so many of your videos i am so incredibly sorry this is happening
2025-11-14 01:25:51
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Nicole Becker :
Have you been evaluated by an audiologist? They can make great recommendations for hyperacousis therapies/treatments. I am an audiologist and the biggest thing I tell people with huperacousis is you actually don’t want to avoid sounds (I know it sounds crazy) but the more you avoid the worse the reaction to them are. It’s all about managing the sounds and response to them
2025-11-14 04:55:58
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g :
My heart is honestly breaking for you. No one deserves to be in this much pain, and I’m so, so sorry you’re going through all of this at once. Please try to reach out to a doctor or urgent care if you can. What you’re experiencing can be treated, and you deserve real care and relief. And if things ever start to feel too heavy or overwhelming, please reach out to a crisis line like 988 in the US or your local hotline. You don’t have to face any of this alone. There are people who care deeply about you and want you to feel safe and supported.
2025-11-14 02:06:24
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@Babyboo26 :
Get some noise canceling headphones
2025-11-13 21:50:07
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