I have sarcoidosis and the same happens to me, less now that I get remicade infusions.
2025-11-26 20:11:27
7
Jacqueline :
same girl, same... over it seriously xoxo
2025-11-20 14:47:47
6
Fsaldonis :
Everything you said you hit on point I have lupus and I’m going threw hell but I’m not gonna give up on this illness I will beat it I know I’ll never get rid of it but I will continue to fight and so will you because we are lupus warriors and I’m your lupus sister 💜💜💜💜💜
2025-11-18 16:29:15
5
user1241smokinFl :
But in reality people are not kind
2025-11-17 22:59:23
5
LilRedghr❌️ :
Same here. You aren't alone.
2025-11-17 22:21:30
5
William Brooks :
fellow warrior here very well put
2025-11-17 13:08:54
5
Ali Ward :
I couldn’t say it better if I tried! #LupusStrong💜 #YouAreNotAlone
2025-11-21 01:52:59
5
Christopher Johnson :
😳😳😳
2025-11-18 01:35:46
4
Simmy :
💜💜💜
2025-11-24 03:43:30
4
~Tonya~ :
same here!! 16yrs of this horrible disease..we need a CURE!! Not just meds to mask the pain...
2025-11-17 21:07:45
4
Nika :
💜💜💜 I'm a lupus girly and you described this perfectly
2025-11-17 06:01:19
4
Ashlynn :
so true
2025-12-27 05:10:57
4
Brittney borton :
I have lupus too and was told I am not approved of the treatment I have similar symptoms and now dealing with respiratory lung failure
2025-11-24 05:27:32
4
TreyNae :
💜
2025-11-19 04:53:21
3
MaryKate :
I’m with you girl I feel everything that you feel you’re not alone. Just want you to know that we got this.
2025-11-16 17:24:19
3
aprilboyd1233 :
sry girl!!!! 🙏
2026-04-07 22:55:40
3
AmberLyn_406 :
Helps others understand and I’m not the only one
2025-11-29 04:12:20
2
Nic_37$kitz :
joint pain, felt feverish b4 bed, ended up sweating through my pj's twice and my blankets and sheets and pillows sopping wet. working with a rhumetologist, but idk this seems so relevant.
2025-11-22 17:26:21
2
mrwilliams0013 :
All of this!! Had it for close to 10 years now
2025-12-03 19:04:27
2
❌️RockdaleCountryGirl❌️ :
Do men abuse you for being sick? They do me i am forced to hide my sickness and pretend I'm not in pain
2025-12-21 18:17:33
2
The Firecrotch Fairy :
Newly diagnosed, any tips you all could share with me would be appreciated
2025-12-27 22:12:28
2
J A N N I_M🩷 :
It seems to get worse for me as I age, I’m sorry. I live with it too.
2026-01-15 04:19:25
2
Hayden Headlight Restoration :
Have you had the blood work for reactivated EBV?
2025-11-16 17:33:15
2
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