@sugarbunn10: I left out so many details but this is the gist of what i've been through since getting sick 4 years ago 🥺 i was a happy and healthy girl before, working her dream job. Bubbly, extroverted, madly and deeply in love with this life. Chronic illness, mainly and especially hyperacusis, has stolen everything from me. I can't promise i'll have good updates because hyperacusis has no cure, but i appreciate everyone's support and wanting to follow along 🥺💖🫶🏻 #chronicillness #disabled #hyperacusis #gastroparesis #chronicallyill
How do you listen to audiobooks and music and podcasts if you can’t listen to the fridge? Real question not saying you are lying
2026-10-20 07:38:02
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Bobbie0 :
Have any of these diagnoses been made by a Dr?
2026-10-20 19:30:36
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BethFurr❤️ :
Why don’t you have a GJ tube that bypasses the stomach?
2026-10-24 00:34:34
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chetcoco :
pots symptoms could be from dehydration
2026-10-20 16:09:17
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Lalaa🧿⛈️ :
I’m not going to assume you are lying, but I drink ensures too mainly in the morning bc I’m too nauseous to eat anything. Ensures have water as their primary ingredient, along with milk protein concentrate (and sometimes a small amount of nonfat milk.) you said you can’t consume none of those? I’m just trying to understand.
2026-11-03 11:47:09
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Amanda Boltz :
Praying
2026-11-03 16:31:37
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Ashleigh Willis :
Weird question were you ever around mold in your life? Also have you ever been tested for heavy metals and lead poisoning?
2026-10-24 21:29:34
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D :
It all sounds connected. Like some weird autoimmune disorder or a parasite or something. I feel like describing a migraine as “brain on fire” is not something I’ve ever heard.
2025-11-26 10:49:18
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Sarah :
wearing hearing protection 24/7 will make hyperacusis worse
2026-10-21 21:40:42
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Jellybean :
Me trying to call in sick
2025-12-14 04:19:22
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Nurse Nikki 🩵 :
As a nurse I learned that everyone has difference tolerances when they suffer from certain disorders! Just because she can eat ice cream doesn’t mean that she can drink water and I know that doesn’t sound like it makes a whole lot of sense to people, but it makes sense to her body… Just because ice cream melts down to a liquid it doesn’t mean that it’s the same drinking water…. someone with dysphagia can eat ice cream, but can’t drink regular not thickened water… All I’m saying is I’ve learned over the years that you can’t just judge somebody… It seems like her Gastroporisis and pots were diagnosed by a doctor. I don’t know about the sound disorder that is probably something that would be hard to diagnose but that doesn’t mean she doesn’t have it either! She had a prescription to get IV fluids so clearly a doctor believes that she has gastroparesis and gastroparesis is diagnosed with testing I know because I have it also!!! I have had it for years since my first daughter was born in 2013! I don’t have as severe symptoms as she does, but definitely is a miserable thing to suffer from!
2026-10-21 12:03:07
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irene :
idk, everything seems connected, like an autoinmune disease, I'm so sorry you're going through this and not getting any answers
2025-11-20 05:50:04
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DEXTROBRO :
as a more permenant solution, have you thought about moving rurally? like not a town or small city, like properly rural
regardless, im so sorry, this sounds awful and i hope you can find treatment that works for you
2025-11-20 02:40:49
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cora :
the fact that it’s getting worse to the point of intolerance of stimulus means you MUST go to a lot of specialist all of this is connected
2025-11-28 00:04:36
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Ayoncè :
I don't know what to say😭You just kept going, and going. I wish technology and science can develop fast!
2025-11-21 21:41:31
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Chlo$ :
Gosh this truly sounds like hell on Earth. I am so sorry you’re going through this. I can’t imagine how difficult this must be and how frustrated you might feel. Please please do not lose hope!! I know it may feel impossible given the circumstances, but I know someday you will get better. Do not give up! Take one day at a time❤️I’m praying for you, love.
2025-11-20 02:23:15
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Ichigo 78 :
Doctors can prescribe for just iv fluids and fhey can be shipped from infusion pharmacies across the country so there's no reason this should be an issue. I work at one we have a few patients on just iv hydration AND they are also all over the country. Its more rare for us to have these patients but this doesnt make sense to me
2026-10-28 23:27:41
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Regina Simmons :
How do you have the energy to make all these videos
2026-10-25 04:21:02
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Bobbie :
Have you ever had a brain scan? Could the sound and neurological symptoms be inflammation due to something in the brain? I’m reminded of that movie Brain on Fire.
2026-10-22 07:05:46
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Amy Rodriguez :
Have they explored the option of Jejunostomy feeding tube (J-Tube)? It totally bypasses the stomach and allows for you to receive fluids and proper nutrition. Another option would be TPN.
2026-10-20 19:17:29
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Pamela Emdin Kaiser :
I had what you have
2025-11-22 05:18:03
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