Dr. Grace | hEDS, pelvic floor
Region: US
Friday 21 November 2025 01:07:33 GMT
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Jei :
I developed Dysautonomia this year. I've been to pt departments at hospitals here in NYC but they all told me that I need to go find a specialist physical therapist somewhere else because they don't offer this sort of help. I CAN'T ANY PLACE THAT ACCEPTS INSURANCE
2025-12-29 10:36:16
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Erin :
Ahhhh!! But my body hates any pressure on my tummy!!
2025-11-21 15:46:27
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elle_ako :
*cries in endometriosis* abdominal compression HURTS
2025-11-21 02:03:21
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LB :
Jelliebend has been a game changer for me. I also have SI joint issues and I felt so much relief as soon as I put one on
2025-12-13 21:33:14
272
Resortgirl :
Learned from my facia therapist that my very tight muscles do limit blood flow. Did not realize that.
2025-11-21 11:11:13
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Cindil :
lol what do you mean I can’t drink all my liquids at once? How else does one live ?
2025-11-21 02:06:49
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Velvet :
Midodrine was an overnight life changer for me! Got rid of coat hanger pain, some muscle aches, and of course the dizziness and fainting when standing. Gave me so much more energy! Abdominal compression helped a bit but wearing a brace changed the way I walked and hurt more than it helped
2025-11-22 05:59:36
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kADyHD :
I tell everyone to get a lipid soluble B1 (crosses blood brain barrier) and magnesium supplement together and it will help your brain, gut, everything! Nerve pain. No one realizes they don’t get enough B1 but it’s nearly impossible with our food supply & chronic stress and pain makes you need more!!
2025-11-22 14:32:32
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Lex :
Bro I can’t use abdominal compression. It gives me terrible stomach cramps. I wish they made compression shorts or something with the stomach cut out cuz I can’t even wear regular leggings they hurt to much. 😭🙏 Like this is what I need:
2026-01-06 19:54:45
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littlefaun :
Random, but do you have any tips and tricks to help with gastroparesis and how hEDS affects that?
2025-11-21 01:13:49
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jax_onechaoticcrafter :
I put on Spanx today, and I could literally feel pulsing up my back, through my neck, and my body felt lighter 😭😭😭😭😭
2025-11-25 05:41:59
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8Berly8 :
I also have POTS and she says abdominal compression is more important than compression socks.
2025-11-22 16:57:53
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Petey☀️ :
No wonder I always felt better wearing a corset 😭
2025-12-18 19:22:00
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Lil'bit🩵🤍 :
my friends husband told me yesterday that I was being "hysterical and needed to calm down". my great rate was 186, my legs and hands were shaking so much I couldn't walk, and I was seeing spots. but, you know, all I needed was to calm down 🙄
2025-11-21 23:42:06
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JK :
Does anyone feel Heavy in the pelvic floor area while wearing abdominal support? For me it feels like im squeezing everything out there and i am feeling pressure in pelvic floor 🫣 but i would really love to wear my sciatic belt or tummy supporting leggings 😩
2025-11-29 11:25:54
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christa09018 :
do you have any recommendations for repeated anterior shoulder dislocations?
2025-11-21 10:32:55
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🖤♦️👑 Crow 👑♦️🖤 :
i find it incredibly difficult to have any kind of compression from the abdomen up because I also have PCOS and therefore an apron belly 🥺 I usually wear pretty tight leggings and that helps but then I also can't eat much when I'm out 😭
2025-11-21 08:06:56
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Pants207 :
I wish i could wear abdominal compression. The most I can do is a tighter one piece bathing suit. anything more than that makes me panic and nauseous
2025-11-22 08:23:02
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Kimmins :
is that why I feel better in a corset?
2025-12-29 03:20:41
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Spring 2026 :
this explains why when I wear spanx I feel better. if not I feel tired foggy and can't stand straight up
2025-12-20 18:10:55
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JamesRose 🇨🇦🌹 :
do you know of any compression garments that don't have much behind the knees? Throughout the day my knees are usually bent, whether laying on the couch or sleeping or whatever. I find compression garments are too tight or have too much fabric back there and it cuts off circulation
2025-11-21 19:15:49
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I don't know why I'm here :
As someone with EDS and an eating disorder, the suggestion about wearing spanx makes me absolutely rage.
2026-01-11 13:03:13
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nick :
my poor boyfriend is autistic w/sensory issues around compression, and also most likely has hEDS as well. RIP
2026-01-22 19:14:10
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LeavingTTforYT.FDT :
Aren’t electrolyte drinks dangerous for the kidneys on a regular basis?
2025-11-21 15:53:37
0
tenaciousapprentice :
I got super lucky with the compression....it caused massive MCAS flares with projectile vomiting! Yay!
2025-12-26 09:53:37
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