@mackenzies_eb_journey: Life with Epidermolysis Bullosa is filled with wound care, pain management and attempting to keep her fragile skin safe. But it’s also full of joy, laughter, love. It’s full of playing, growing, conquering. She teaches me so much, and I am so amazed by her every day. It’s hard and worth it. Both things are true. #babytok #parenting #duality #medicalmom #fyp
I will never understand 🤨. If I ever meet god if there is one we are going to have words.
2025-11-25 22:50:00
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Haley🌈 :
My heart🥺 this poor sweet angel. You're both so brave, I pray she always is a happy girl💗 hugs to you both
2025-11-24 02:27:27
23
MarissaB :
Poor baby. We need a cure for this horrible disease. 🦋💜
2025-11-28 16:21:12
8
stacys82 :
No child should go thru this. My heart hurts for this gorgeous girl
2025-12-22 17:41:13
2
Gumisie 13 :
You look so big Mackenzie, so happy and strong despite it all. Sending love, healing and happiness ❤️💪 and sending your momma loads of strength 💪
Absolutely beautiful and amazing little family
2025-11-24 23:02:58
0
E23 :
Breaks my heart, you’re a amazing mum 🫶 she chose you for a reason 🤍
2025-11-27 11:08:26
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bonzaitzu :
Sending daily prayers for you and your family 🙏🙏🙏 she is such a beautiful baby and so brave 🙏🙏🙏 may God bless her and heal her forever
2025-11-24 02:20:04
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Towelie :
❤️❤️🦋 Ya'll just have the most precious souls. Just like Darcie and Ellie. ❤❤❤ Ya'll inspire me everyday.
2025-11-24 02:21:13
1
Lindsey :
She's lucky to have such an amazing momma and family!
2025-12-08 03:50:39
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knifeclan :
she is magical 💗
2025-11-24 05:08:54
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💛Renie 🦋🐚Marie🩵 :
A beautiful little warrior 🥰🥰
2025-11-26 12:59:20
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Orbán Kata :
You are so wonderful🦋💕
2025-11-24 04:02:14
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sharon.ducas :
Kenzie you are so strong and resilient!! You inspire me and I love you ♥️
2025-11-24 07:23:37
1
Sara Tasca770 :
Amore 🙏♥♥♥tu sei più forte di EB❤️❤️❤️❤️
2025-11-27 12:35:10
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Mina Moutzouri :
Αγαπη μου,δωσε μια θεραπεια Θεε μου❤️
2025-11-24 09:31:37
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Lili1117 :
Hermosa bebesita, Dios te bendiga cada día y pronto porfavor se encuentre una cura para la Eb 🙏🏻🩷
2025-12-03 23:47:33
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sharon.ducas :
Kenzie I love you
2025-11-27 08:52:08
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jamieiris18 :
Hugs 🤗❤️
2025-11-24 03:34:08
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anarios9171 :
Love you Mackenzie ❤️❤️
2025-11-24 03:01:31
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𝑎 𝑏 𝑖 🪼🧘🏼♀️˚ . :
i’m so sorry, i hope the best for her health journey ☹️
2026-05-09 06:00:46
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sometimes End EB🦋🦋🎗️👑🎀🎖️ :
can you let me a about EB and if she is gowing to live I am so sorry to ask🌸
2025-11-29 23:03:23
3
Dasha&Emeryck 🦋🦋🦋 :
i absolutely hate EB so much. but I'm incredibly grateful for my two littles living with it. but you're so right. so quickly they go from content, happy and playing to skin tearing and bleeding. especially when learning to crawl, walk or run. my girl has been getting so many new wounds since starting to walk a bit on her own
2025-11-24 04:00:20
0
Kristen ⚡️ :
Poor baby 💔😭🙏🏼
2026-03-22 05:00:07
0
treehugginbabe :
😭😭😭😭🙏🏼❤️🩹
2026-03-22 03:42:07
1
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