@mackenzies_eb_journey: Life with Epidermolysis Bullosa is filled with wound care, pain management and attempting to keep her fragile skin safe. But it’s also full of joy, laughter, love. It’s full of playing, growing, conquering. She teaches me so much, and I am so amazed by her every day. It’s hard and worth it. Both things are true. #babytok #parenting #duality #medicalmom #fyp

Mackenzie’s EB Journey 🦋
Mackenzie’s EB Journey 🦋
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Region: US
Monday 24 November 2025 02:13:41 GMT
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autumn35land
momx2 :
My heart hurts for her
2025-11-24 02:16:15
130
hunnybump5
Hunny🇨🇦 :
I will never understand 🤨. If I ever meet god if there is one we are going to have words.
2025-11-25 22:50:00
34
haleyspencer710
Haley🌈 :
My heart🥺 this poor sweet angel. You're both so brave, I pray she always is a happy girl💗 hugs to you both
2025-11-24 02:27:27
23
mberthcsi
MarissaB :
Poor baby. We need a cure for this horrible disease. 🦋💜
2025-11-28 16:21:12
8
stacys82
stacys82 :
No child should go thru this. My heart hurts for this gorgeous girl
2025-12-22 17:41:13
2
gumisie14
Gumisie 13 :
You look so big Mackenzie, so happy and strong despite it all. Sending love, healing and happiness ❤️💪 and sending your momma loads of strength 💪 Absolutely beautiful and amazing little family
2025-11-24 23:02:58
0
emilyy_c1
E23 :
Breaks my heart, you’re a amazing mum 🫶 she chose you for a reason 🤍
2025-11-27 11:08:26
0
bonzaitzu
bonzaitzu :
Sending daily prayers for you and your family 🙏🙏🙏 she is such a beautiful baby and so brave 🙏🙏🙏 may God bless her and heal her forever
2025-11-24 02:20:04
0
towelie00420
Towelie :
❤️❤️🦋 Ya'll just have the most precious souls. Just like Darcie and Ellie. ❤❤❤ Ya'll inspire me everyday.
2025-11-24 02:21:13
1
lindsey1984
Lindsey :
She's lucky to have such an amazing momma and family!
2025-12-08 03:50:39
0
knifeclan
knifeclan :
she is magical 💗
2025-11-24 05:08:54
0
rubygyrl3
💛Renie 🦋🐚Marie🩵 :
A beautiful little warrior 🥰🥰
2025-11-26 12:59:20
0
opkata469
Orbán Kata :
You are so wonderful🦋💕
2025-11-24 04:02:14
0
sharon.ducas
sharon.ducas :
Kenzie you are so strong and resilient!! You inspire me and I love you ♥️
2025-11-24 07:23:37
1
sarap7701
Sara Tasca770 :
Amore 🙏♥♥♥tu sei più forte di EB❤️❤️❤️❤️
2025-11-27 12:35:10
0
minamoutzouri
Mina Moutzouri :
Αγαπη μου,δωσε μια θεραπεια Θεε μου❤️
2025-11-24 09:31:37
0
lili111731
Lili1117 :
Hermosa bebesita, Dios te bendiga cada día y pronto porfavor se encuentre una cura para la Eb 🙏🏻🩷
2025-12-03 23:47:33
0
sharon.ducas
sharon.ducas :
Kenzie I love you
2025-11-27 08:52:08
0
jamieiris18
jamieiris18 :
Hugs 🤗❤️
2025-11-24 03:34:08
0
anarios724
anarios9171 :
Love you Mackenzie ❤️❤️
2025-11-24 03:01:31
0
abzz.223
𝑎 𝑏 𝑖 🪼🧘🏼‍♀️˚ . :
i’m so sorry, i hope the best for her health journey ☹️
2026-05-09 06:00:46
0
ana.ramirez551
sometimes End EB🦋🦋🎗️👑🎀🎖️ :
can you let me a about EB and if she is gowing to live I am so sorry to ask🌸
2025-11-29 23:03:23
3
sophiethelou
Dasha&Emeryck 🦋🦋🦋 :
i absolutely hate EB so much. but I'm incredibly grateful for my two littles living with it. but you're so right. so quickly they go from content, happy and playing to skin tearing and bleeding. especially when learning to crawl, walk or run. my girl has been getting so many new wounds since starting to walk a bit on her own
2025-11-24 04:00:20
0
theessenceofkristen
Kristen ⚡️ :
Poor baby 💔😭🙏🏼
2026-03-22 05:00:07
0
treehugginbabe
treehugginbabe :
😭😭😭😭🙏🏼❤️‍🩹
2026-03-22 03:42:07
1
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