Ellie Kerrigan
Region: US
Tuesday 25 November 2025 04:01:21 GMT
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Carolyn Smith :
My cousin has SMA 2 and my friends have SMA 1! Have you been approved for spinraza?
2026-08-19 01:50:53
70
plsham8 :
Went to camp with several sma girls. I have fsh muscular dystrophy. I’m so glad you are able to enjoy life. You’re truly an inspiration!!
2026-08-16 05:55:53
135
Stella The Chitown Pug Pug :
Thanks for educating us.
2025-11-25 14:13:29
946
Crush SMA :
Spinraza is a miracle drug 🙏 Love your video 😁
2026-05-18 11:45:25
11
puddin💋 :
thank you so much for explaining and educating ❤️
2026-04-25 15:53:26
28
not.brado :
may the Lord strengthen you always
2026-04-28 21:36:05
9
Lou :
Ellie, you are sooo cute, so positive and so very, very special in every way- I am a 79 year old Grammy - I have 2 sons, 2 grandsons and 2 great grandsons, I always wanted a girl and I would be so happy to have one like you Ellie - I love watching all your videos, you are beautiful in so many ways! KEEP SMILING PRECIOUS LITTLE ELLIE KERRIGAN! ❤️🌺🌺❤️
2026-04-20 19:48:05
54
__abr :
As a fellow sma (post grad) sorority girl, I love watching you thrive!
2025-11-25 17:48:20
59
wandering_thru_life82 :
My son had Nemaline Dystrophy. I’m following because I didn’t get to see him grow up past the age of 5. you are amazing. ❤️❤️❤️
2026-04-25 13:25:06
11
Deven White :
My lil bro got type 2 🤟🏾💪🏾
2026-05-17 13:01:22
8
JeffreyLockwood :
Thank you for being an educator and advocate! 💜
2026-07-15 16:30:44
5
Tiger311 :
Thank you for explaining. Are there different forms of SMA?
2025-11-25 04:42:23
114
runninginvegas :
Love your energy!
2025-11-25 04:48:11
6
Maddie :
I have sma too!!
2026-04-07 01:15:09
9
♿️Autumn♿️ :
I love our community!
2025-11-27 15:43:21
7
melissavito70 :
So gorgeous!
2025-12-28 23:53:54
14
elly #1tshdenjoyer :
I have sma type 2! ive been on Evrysdi
2026-04-14 03:00:24
4
user20834395059350 :
You look great in everything, but that blue is your color! 🔥
2025-11-25 08:44:29
233
Patrick Mullett :
You are fantastic. KEEP POSTING POSITIVE CONTENT. Thanks for raising awareness, my neice (13) has SMA type2 and she is on Sprinraza also.
2026-05-18 13:29:45
8
:
you're still v beautiful
2026-04-05 22:30:57
55
kenn :
A true miracle ❤️
2025-11-25 07:12:35
9
EquiNest :
Stunning
2025-11-25 12:11:53
5
Jenny Lisa :
I recently had a twin mom pop up on my FYP and she has identical twin girls who have SMA as well. Not sure if they have the same type as you or not since I know there are levels but I thought you would appreciate hearing about them. They are little (not in school yet).
2025-11-25 14:45:03
26
Kerry P :
I have two friends who lost their babies during infancy to SMA so you and your story are truly amazing!
2025-11-25 12:24:13
5
Lou :
Thanks so very much for your answer Ellie, you are an amazing girl and beautiful too.
2025-11-27 15:47:49
9
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