@emma_e_warner: Replying to @eternally.damned I’m so sorry I can’t really help I would juat stick to your gut and advocate for yourself! You know your body the most. 🧡 #crpsawareness #crpsawareness #crpswarrior #chronicillness

emma_e_warner
emma_e_warner
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Tuesday 02 December 2025 14:54:17 GMT
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tash.r.ward
tash.r.ward :
Is it possible to have CRPS in your spine?
2025-12-02 15:02:55
2
xcbgamingx
ᴄʀᴀɪɢ 🤍 ɢɪɴɢᴇʀʙʀᴇᴀᴅ ᴄʀᴇᴡ 🤍 :
Aww bless you!! I was diagnosed in sep 1999 @ the age of only 10 😫 Turning 38 in August , It's an awful disease! my dm is open if anyone wants to share their story.
2026-06-15 13:49:48
0
user97655689754
user97655689754 :
Are you still in pain?
2025-12-08 11:23:27
0
lavendersloth04
Lavender 💜 :
CRPS is so different for everyone which I think makes it hard to give universal advice and can make it hard to connect. I have CRPS in my right leg and amputation isn’t the right treatment for me. I sometimes use a wheelchair and sometimes I can walk.
2025-12-02 18:55:54
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shitney.whitshit
Whitto :
I took 2 years to get diagnosed. I wish more providers were educated on it because it was a very straightforward case and it took COUNTLESS providers to diagnose it. Good advice given hope you’re recovering well ❤️
2025-12-02 23:40:20
1
tengu4104
Tengu :
I had a blocked artery which gave me symptoms very similar to yours, I had a major stroke 2 years before so my Gp wouldn't listen to me and just fobbed it off as nerve damage from the stroke. I contacted the physio service as a self referral, it was my physio who listened to me and forwarded me to a specialist who diagnosed the blockage 9 months after it started. If I had listened to my Gp I would also have had my leg amputated. I got lucky and kept my leg but after 9 month of little blood flow it is pretty much numb now. I hope a lot of people take your advice before it's too late.
2025-12-09 12:00:22
0
eternally.damned1
eternally.damned :
Appreciate your response so much !!
2025-12-03 16:01:07
1
qsfffkd
Rana Ram 0000 :
🙏🕉️🌹
2025-12-08 12:23:30
0
gyusz6
730047 :
🌹🌹🌹
2025-12-05 11:46:47
0
slobo147
Bobo147 :
🥰
2025-12-04 15:15:44
0
dannybecker66
Danny :
🥰
2025-12-29 08:14:04
0
thepossum62
Allardyce Merryweather :
i have heard of some patients choosing amputation
2025-12-02 17:52:25
2
tonyingram835
Tony :
if you have been diagnosed with CRPS make sure your consultant has had specialist training in CRPS otherwise you will be given insufficient advice and even sometimes the wrong advice. I have suffered with CRPS since 2017 and in the end had a near full leg amputation instead of just my foot.
2025-12-02 18:34:00
1
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