@beth_and_coop: It’s been a minute since we talked about Waardenburg syndrome, which is Coop’s diagnosis. Now that he’s old enough to understand it, he requested a car chat about it. Waardenburg Syndrome affects about 1 in 40,000 people. It can affect pigment and impact hearing. For Coop, it’s the reason behind his white hair streak and unbelievably blue eyes, as well as his deafness. There are 4 types of Waardenburg and 6 known gene associations (likely more that haven’t been discovered). Genetic testing didn’t link any of the known 6 for us, but Coop still meets the clinical diagnostic criteria and likely has one of the not yet discovered gene associations. Fun fact: Waardenburg Syndrome is common in ferrets, and they also have a white streak and are often deaf.

Beth & Coop 🤟🏻
Beth & Coop 🤟🏻
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Saturday 06 December 2025 18:36:23 GMT
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_jen_hamilton_
Jen Hamilton :
I love coop so much
2025-12-07 03:54:03
7696
swaites2
Stacey Waites268 :
Can’t say he is missing any confidence. I love it!!!
2025-12-06 19:48:18
1741
alymo25
alyssam :
"because im cute!" oh Coop- you make my day!
2025-12-06 18:47:08
1359
schrodingirl
C$ :
He is unbelievably smart
2025-12-11 05:07:51
156
ashleyrichardson626
Ashley Richardson :
Coop do be having some BRIGHT blue eyes! As a blue eyed human....his blue is so amazing!
2025-12-06 22:45:42
156
robin6176
Robin Ellenberg :
He is so insanely smart.❤
2025-12-06 20:51:15
206
jessicawethington1
jessicawethington1 :
I love how open and honest you are with Coop, this is how we should
2025-12-06 20:49:19
33
lisa.klimas
lisa.klimas :
To think there was once concern that he wouldn’t talk. 😂 I remember the first time he called you Mom, you were beaming. You have both come so far.
2025-12-07 02:25:40
75
bekileigh13
Beki :
Oh my gosh! He’s 6 years old! Thank goodness he said! I totally mistook him for being 80 years old! Phew, I’m so glad he told me now! (Omg so cute!!!!)
2025-12-08 14:26:54
83
affirm.neurodiversity
affirm.neurodiversity :
As a now-adult who grew up with different needs, I can’t explain how healing it is to hear the way you talk to him about this and how he talks about himself. This level of candid, positive, reassuring conversation will inform how he navigates challenges and advocates for himself, and you’re truly doing an amazing job!
2025-12-07 05:57:26
57
el.cupcake
Cupcake Murder :
When cats and dogs are born all white and have very light blue eyes, it's common for them to be deaf. Could this is be a similar syndrome?
2025-12-07 00:56:31
91
riztriest797
Riz triest :
Lil man got me crying he’s very intelligent and well spoken
2026-01-21 15:12:45
18
kls0716
Kristina Malson :
He’s correct, he is so cute!!! His videos and his little voice makes my day!!!💙
2025-12-09 00:57:46
5
amlink_43
amlink_43 :
He has the best eyes and is the cutest!
2026-02-04 02:40:43
6
reedrich0rds
ReedRich0rds :
I love how you treat him like an adult about his condition
2025-12-08 14:13:52
62
bkatlady
Brittany Anderson :
Coop is the best little advocate.
2025-12-08 14:01:50
5
msjillsy
Jillian :
He’s so freaking smart 💕
2025-12-07 22:22:10
8
holisticflutterby
Holistic Flutterby :
coop got me crying today. I say it everytime... the world needs to be more like coop. his perspective is a breath of fresh air. Great job mama (and dad). 🥰
2025-12-06 18:47:30
142
legendofurka
BioTeach🆘🇺🇸🆘 :
Okay but a plus to you momma that he loves his syndrome. You're doing amazing!!!!
2025-12-07 04:47:45
18
mx.fuller
Mo. :
I went to elementary school with this girl who was black and had ice blue eyes, a white streak in her hair and was deaf. Her dad and brother were also deaf and had white hair. My mom and I have always tried to figure out what they had (they were so beautiful they’ve stuck with us lol)
2025-12-06 22:41:07
236
reggie_anna
Reggianna :
The way you talk to him is so amazing 🥰 his ability to understand complex topics is 100% because you don’t treat them as too complex for him. I wish more parents were able to speak to kids like this instead of just writing them off.
2025-12-07 03:55:50
22
living.in.la
LivingInLa :
He is brilliant in every way ❤
2025-12-06 19:19:14
23
nerdyashley13
nerdyashley13 :
My nephew has the same syndrome, type 4. His hair was white blonde, he was so precious. He passed one year ago in October of this year. Seeing Coop talk about what makes him special brought me so much joy, Jack was so special to us to.
2025-12-18 02:48:25
7
cdono1
Courtney? :
I remember finding Stef Sanjati’s waardenberg syndrome video years ago & I think it’s so interesting & she is so beautiful!
2026-01-03 01:38:36
75
shez2588
Sheryl Jane Craigon :
yes coop you are cute 🥰🥰
2025-12-06 19:37:16
18
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