@beth_and_coop: It’s been a minute since we talked about Waardenburg syndrome, which is Coop’s diagnosis. Now that he’s old enough to understand it, he requested a car chat about it. Waardenburg Syndrome affects about 1 in 40,000 people. It can affect pigment and impact hearing. For Coop, it’s the reason behind his white hair streak and unbelievably blue eyes, as well as his deafness. There are 4 types of Waardenburg and 6 known gene associations (likely more that haven’t been discovered). Genetic testing didn’t link any of the known 6 for us, but Coop still meets the clinical diagnostic criteria and likely has one of the not yet discovered gene associations. Fun fact: Waardenburg Syndrome is common in ferrets, and they also have a white streak and are often deaf.
Beth & Coop 🤟🏻
Region: US
Saturday 06 December 2025 18:36:23 GMT
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Jen Hamilton :
I love coop so much
2025-12-07 03:54:03
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Stacey Waites268 :
Can’t say he is missing any confidence. I love it!!!
2025-12-06 19:48:18
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alyssam :
"because im cute!" oh Coop- you make my day!
2025-12-06 18:47:08
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C$ :
He is unbelievably smart
2025-12-11 05:07:51
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Ashley Richardson :
Coop do be having some BRIGHT blue eyes! As a blue eyed human....his blue is so amazing!
2025-12-06 22:45:42
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Robin Ellenberg :
He is so insanely smart.❤
2025-12-06 20:51:15
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jessicawethington1 :
I love how open and honest you are with Coop, this is how we should
2025-12-06 20:49:19
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lisa.klimas :
To think there was once concern that he wouldn’t talk. 😂 I remember the first time he called you Mom, you were beaming. You have both come so far.
2025-12-07 02:25:40
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Beki :
Oh my gosh! He’s 6 years old! Thank goodness he said! I totally mistook him for being 80 years old! Phew, I’m so glad he told me now! (Omg so cute!!!!)
2025-12-08 14:26:54
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affirm.neurodiversity :
As a now-adult who grew up with different needs, I can’t explain how healing it is to hear the way you talk to him about this and how he talks about himself. This level of candid, positive, reassuring conversation will inform how he navigates challenges and advocates for himself, and you’re truly doing an amazing job!
2025-12-07 05:57:26
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Cupcake Murder :
When cats and dogs are born all white and have very light blue eyes, it's common for them to be deaf.
Could this is be a similar syndrome?
2025-12-07 00:56:31
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Riz triest :
Lil man got me crying he’s very intelligent and well spoken
2026-01-21 15:12:45
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Kristina Malson :
He’s correct, he is so cute!!! His videos and his little voice makes my day!!!💙
2025-12-09 00:57:46
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amlink_43 :
He has the best eyes and is the cutest!
2026-02-04 02:40:43
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ReedRich0rds :
I love how you treat him like an adult about his condition
2025-12-08 14:13:52
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Brittany Anderson :
Coop is the best little advocate.
2025-12-08 14:01:50
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Jillian :
He’s so freaking smart 💕
2025-12-07 22:22:10
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Holistic Flutterby :
coop got me crying today. I say it everytime... the world needs to be more like coop. his perspective is a breath of fresh air. Great job mama (and dad). 🥰
2025-12-06 18:47:30
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BioTeach🆘🇺🇸🆘 :
Okay but a plus to you momma that he loves his syndrome. You're doing amazing!!!!
2025-12-07 04:47:45
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Mo. :
I went to elementary school with this girl who was black and had ice blue eyes, a white streak in her hair and was deaf. Her dad and brother were also deaf and had white hair. My mom and I have always tried to figure out what they had (they were so beautiful they’ve stuck with us lol)
2025-12-06 22:41:07
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Reggianna :
The way you talk to him is so amazing 🥰 his ability to understand complex topics is 100% because you don’t treat them as too complex for him. I wish more parents were able to speak to kids like this instead of just writing them off.
2025-12-07 03:55:50
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LivingInLa :
He is brilliant in every way ❤
2025-12-06 19:19:14
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nerdyashley13 :
My nephew has the same syndrome, type 4. His hair was white blonde, he was so precious. He passed one year ago in October of this year. Seeing Coop talk about what makes him special brought me so much joy, Jack was so special to us to.
2025-12-18 02:48:25
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Courtney? :
I remember finding Stef Sanjati’s waardenberg syndrome video years ago & I think it’s so interesting & she is so beautiful!
2026-01-03 01:38:36
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Sheryl Jane Craigon :
yes coop you are cute 🥰🥰
2025-12-06 19:37:16
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