@dawnstorms10: Little miss Josie really is learning to work her mouth even without her Passy Muir speaking valve. She coos and blows raspberries like a typical 6 month old, only quieter. And of course there are no shortages of those big gummy smiles. I really hope we’re not here too much longer but they haven’t mentioned going home yet. She’s still on continuous feeds which means they haven’t dropped to boluses yet. I don’t think we’ll be coming home Monday but I can’t rule out Tuesday or Wednesday without talking to the doctor first. All in all, she’s a happy little baby and I can’t wait to get her back home. #arthrogryposis #medicalmom #PICU #childrenshospital #trach