@darcies_story: The last 48 hours have been the hardest we’ve faced with Darcie. She’s had all the pain relief she can, which means she’s been sleeping almost constantly. When she is awake, she’s still managing feeds, which is postive. This morning she’s been opening her eyes a bit more, but they’re still sore and only open for short moments. We still don’t know what’s causing this… she’s fighting so hard, and we’re praying each day brings us closer to our happy little Darcie again. We’ve been giving her so many cuddles, the last 2 days. Telling her, how much we love her❤️ EB is so unbelievably cruel — every dip makes you fear the worst. Hoping for a more positive update next time. 🦋❤️ #epidermolysisbullosa #EBawareness #terminal #fyp #foryouu