@charlize_medical_journey: After a massive tonic clonic seizure I fell asleep on the couch and mum filmed this! I was having focal and myoclonic seizures in my sleep! #fyp #epilepsy #seizures #chronicillness #focalseizure
Is it common to get seizures when standing up because I’m trying to figure out if I get them when I stand my whole body goes numb and tingling and I’m like shaking but jerking so not really fast and I loose my balance most of the time and recently I fell onto my bed and remembered dreaming and felt stuck or like I was trying to get up but couldn’t and I recorded this last one and when I got out I was so bummed that I didn’t record it but then I realised that I did after seeing my phone
2026-01-07 06:03:52
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Severine :
I have most seizures while sleeping
2025-12-09 06:43:55
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marcellydias137 :
Hi, if you wake her up, does it stop immediately?
2026-03-08 20:56:01
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The Bendy Bitch 🦓 :
I have myoclonics in my sleep too 😔 as well as all day long. Waiting for my prolonged EEG.
2025-12-08 00:56:43
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M-C 🍉 :
anyone having only myoclonic all day and or during sleep?
2025-12-14 15:21:59
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clownfishclownshoes :
Thank you for posting this! I am currently undiagnosed, but I managed to get a video of one and it literally looks almost identical to yours! Its scary not knowing, but this made me feel so much better about getting a diagnosis.
2026-01-27 10:25:18
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_CHEY_ :
ok so one wish for christmas is that no one has ti suffee this ever again but unfortunately that ksnt going to happen
instead imma say anyone whos readimg this and struggles any day any time please reaxh out im here for you its hard i understand that so if u need a shoulder to cry on someone to listen im here
2025-12-08 01:22:55
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Chelsea Conway :
I have and hate these just had one this morning was diagnosed this year 🥺
2025-12-08 13:45:07
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NJmuse :
What symptoms are experienced when you wake up?
2026-05-04 23:54:44
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OG_Rhiannon :
I had one these in my sleep a few nights ago and I was able to record myself. It was terrifyijg watching it because I was totally not aware.
2026-01-04 02:54:17
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Sway :
I'm still learning the signs of my daughter's. It's really hard😢
2026-01-06 21:29:05
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Belle 🐶 :
Thank you for sharing this with us. As a parent and dealing with a recent diagnosis of my 17 year old daughter, it is so helpful. Stay strong and wishing you the best 💜💜💜
2026-01-23 19:16:22
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Amaya’s World :
My daughter have a silent seizure doing sleep time as well so I’m praying for you sugar
2026-01-27 14:52:47
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★𝙋𝙊𝙈𝙉𝙄̇★ :
MY FUU- are you okayyy? pls rest and stay strong for me! i will pray for u!💓💓💓
2025-12-07 21:40:21
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Kendoll.James :
Does this count as a sleep disorder for you? Did you take a polysomnograph?
2026-02-02 19:49:37
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🫶SELINA🫶 :
I have these walking daily extremely exhausting 💔also you got this 💜
2026-02-01 01:30:56
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guru :
ı am usin tegretol 3 times 400 cr a day for this which medicine are you using
2026-04-11 08:33:44
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Sway :
didn't even know that this is a thing. omg
2026-01-06 21:40:19
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userntnq25 :
It happens to me, what is the reason for this, what is the disease?
2026-02-12 20:13:24
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Yessy853 :
this is good to know!😳
my 1 yrold have one in his sleep (tonic grand mal), but I didn't know about these facial, silent ones 😳😳 please say more
2026-02-02 09:19:46
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Aulu ⁷ :
Can someone help me distinguish what just happened to me. I thought I had sleep paralysis about like two to three years ago because in my dreams I would suddenly pop back awake and not be able to move and I would hear a strong bell in my ears. I would call out for my sister but nothing would come up. But this was years ago and accompanied with a dream. Today I woke up really early and then eventually felt sleepy but I wasn’t asleep. While I was closing my eyes I felt like a pop feeling in my head wanting to close my eyes shut but then it freaked me out and I opened it but like two seconds later my eyes closed and I couldn’t open them they were like fluttering . As that was happeningthe pop sound happened again and I heard a loud continuous bell noise as well as I tried to pry my eyes open and control them and I saw black but I also again really tried to scream my sisters name but I couldn’t. I was kinda shaking my head but I could t move or control any movement. It lasted only a few seconds though and went it finished I woke up and my room was a little brighter and I made noises but not my sisters name. What the fuck is that.
2026-03-11 18:30:59
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nicole_ann1985 :
Currently in the hospital with my 13 yr old daughter who’s hooked up on an eeg trying to catch an episode. We came into the ER at 10:30pm Sat night. Currently 11am on Monday morning. Hoping we can get answers soon.
2026-01-12 19:02:32
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✨LMB✨ :
No but my 1 year old does this the eye rolling and the exact same movements with her fingers hands she even lip smack and tongue movement should I be worried ?
2026-02-18 00:03:16
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