@darcies_story: Darcie has spent the last few weeks sleeping most of the time. She’s been in a lot of pain, so we’re doing everything we can to make her comfortable and happy. She’s become very clingy and wants to be cuddled all the time, so we’re giving her everything she wants. Taking in everything, living in the moment❤️ She’s started a new medication to see if we can get on top of this pain, whether she declines in health more or gets better, we simply don’t know. But we know she’s tired right now and fighting very hard. We’ve lost all of Darcie’s smiles and would do ANYTHING, to see her happy again. Please bare with us, whilst we do everything we can for Darcie❤️ The Game family x #EBawareness #EpidermolysisBullosa #EB #fyp #babytok