@darcies_story: It’s hard to know where we’re at with Darcie right now. She’s had blisters in both eyes for the past 3 weeks — as soon as one heals, the other becomes a problem. She’s still in a lot of pain, and it’s hard to tell what’s causing it, but we’re doing everything we can to keep her comfortable. She’s been sleeping a lot, but seeing her a bit more awake during the day and being herself has been so special 🤍 Darcie is so determined and such a little fighter. Thank you to everyone who cares about our girl. Wishing you all a very Merry Christmas ❤️🎄 #EBawareness #epidermolysisBullosa #fyp #babytok #butterflybaby