@mmadrigallsresearch: This isn’t about arguing with doctors. It’s about knowing your rights and protecting yourself in a system that often misses complex patients. All statutes mentioned are fully documented in my Patient Rights & Provider Accountability PDF. Link in bio. #ehlersdanlos #connectivetissuedisorder #chronicillness #advocate #doctor
You are allowed to ask for documentation. You are allowed to request accommodations. You are allowed to protect yourself. The exact statutes are included in my Patient Rights PDF (available on its own). Link in bio.
2025-12-30 23:33:03
61
Letsrewiree :
I have stood over an ER nurses shoulder and dictated what I wanted charted. They just write “patient states _____”
2025-12-31 01:05:34
25
KattS :
What about when they falsify info?
2026-01-02 03:01:50
6
san :
what do you do if you get a doctor who threatens to leave multiple times, saying you're interrupting them, when you weren't doing it on purpose? (And the reason you're there is causing short term memory loss, cognitive issues and mental fog, which is why it might come across as interrupting, although not in a hostile way, but to add symptoms), and he ends up being so rude and annoyed that you're sobbing, that you tell him he's an awful doctor and leave. And later find that he wrote in his notes that I was abusive to HIM? I have been treated poorly by staff from the same hospital since, possibly effecting my care. I'm also on disability related to the reasons I was there, and due to cptsd from traumatic experiences.
Due to my issues, it's hard to go forward without assistance because I'm overwhelmed and so traumatized.
2026-01-03 05:33:21
3
KrystalsCustomCreations :
I remember the ER refusing to even see me bc EDS is too complicated, and I need to find another hospital. There’s also the time that a CT Myelogram that caused a CSF leak and the hospital refused to give me a blood patch.
2025-12-31 12:19:43
6
Noisey Lil Bird :
I wish I had an advocate. What happens ...3 ways. ok perfect
2025-12-31 18:37:41
3
Jes16 :
Can you elaborate on how eds & dysautonomia fall under disability?
2025-12-31 02:18:27
6
Alicia Farms :
I know mine doesn't say what I said
2025-12-31 00:46:20
24
Rakell :
Don’t leave the office without your visit summary- PRINTED.
2026-01-03 21:13:43
9
Currin :
report all extra handsy SA medical providers as well, they target the vulnerable
2025-12-31 15:50:15
29
Toad :
😈 YESS!! I saw this is the bundle and about screamed. I needed this! My Dr does not listen!!
2025-12-30 23:35:32
10
Linda :
You can keep going to doctors and get nowhere if they aren’t helping in getting a diagnosis you aren’t getting treatment. I can diagnose myself at this point I’ve been suffering for years. I just can’t find a doctor who is capable of being a doctor.
2026-01-01 14:34:11
5
saraiburke80 :
Thank you so much for this. I just requested my provider to document the refusal of an urgent referral I need.
2025-12-31 22:12:03
7
justme :
Ive reported a few doctors in the past to the state board and Medicaid.
2025-12-31 06:45:36
5
Char/Paws :
so my job terminated me because they could not find a job i xould do do to my disability....do I have recorse
2026-02-18 05:53:19
0
Chrissy Bressner :
100% agree! people need to hold many many people accountable for many many different things
2026-01-03 17:00:29
6
glenetteowen :
Hmmm…now I understand why my doctors never ask anything about what symptoms I have…don’t fit in their quick 15 minute appointment they do in 5 minutes…therefore they never notate much of anything in my records
2026-01-02 03:46:00
6
Chronically Hopef360 :
Some lose access to care
2026-01-01 15:55:59
9
Double jab boxing :
I've Seen five specialist over Gerd symptoms but no one wants to say it's Gerd. they are just tossing me around
2025-12-31 20:09:50
2
moretoliferecovery.com :
There’s nothing that prevents patients from keeping their own records. Better to keep your own records than complain that someone else is not taking your dictation as you desire.
2026-01-01 22:27:54
0
🕸🌟Amy M🌟🕸 :
what if a dr doesn't document a verbal diagnosis they give even after you request it be put in your records?
2026-01-02 20:41:32
1
RedBaran27 :
I have psychological abuse by a neurologist.
I was going to file a complaint.
2025-12-31 17:17:59
4
end medical blacklisting :
Doctors aren't required to do anything. The law may require it but no one governs them. I've been without treatment for 19 months for myeloradiculopathy, severe cervical stenosis, cauda equina and dysautonomia. No treatment at all allowed for me.
2025-12-31 21:35:10
3
Tik Toker :
Right, then your doctor will dismiss you from the practice for no reason. Unless you want to go with me to the doctors I'm never getting my medication back again
2026-01-12 23:16:23
1
🌻 DESS | 40+ MAMA | ADVOCATE :
Working to do this each time and teaching others to advocate. Where are these disability protections and accommodations? I’d love to learn more.
2026-01-01 08:17:49
3
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