Darcie’s Story🦋
Region: GB
Sunday 04 January 2026 19:08:27 GMT
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perpaulette17 :
God knew Darcie would need you and your wife to be her mum and dad. Your love is infallible
2026-01-04 19:15:40
1621
Texas_Mom76114 :
Thank you for sharing Darcie with us💕 Darcie and Ellie were the first two I followed and have learned so much about EB. She has taught more people in her tiny lifetime than most adults will. I pray for her to find comfort with the people who love her the most.
2026-01-04 19:26:19
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Darcies Nannie 🦋🦋 :
Glad you are home gorgeous girl, it was lovely to see you wanting to play with Matilda when we brought her back home today. Nannie and Grandad hope you soon feel better and are back to being little Miss cheeky, we love you Doodles ❤️🦋🥰xx
2026-01-04 19:18:58
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PokeDad :
Heart chain💜
2026-01-04 19:32:06
132
user7754441703994 :
I look for updates on her every day, she is always in my thoughts. I’m glad she home with our loving family
2026-01-04 19:59:50
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L I S A 🩷 :
I want to just come and hug you all and take this pain away💔
2026-01-04 19:44:19
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efe_scentance :
Have you heard of the gene therapy that restores collegen7? its meant to heal her blisters and a breakthrough by Stanford University in USA
2026-01-04 19:57:10
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Rooter :
God give her strength make healthy give her a healthy happy long life
2026-01-16 04:04:57
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𐙚 𝓃𝒾𝒸𝑜𝓁𝑒 𐙚 :
praying for you and your family 🤍
2026-01-04 22:27:09
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Murraysmom :
I’m running out of words…but you’re always in my thoughts and prayers.💕
2026-01-04 19:31:01
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ohitsnene :
winter or summer?
2026-01-05 00:59:24
14
Xshellbabesx :
So hope u all ok and especially darcie
2026-01-11 09:09:07
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Mama Linda :
I’m so so sorry. 💔
2026-01-13 03:51:32
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user3691866550283 :
heart chain
2026-01-05 22:56:16
7
Jo Jo Smile :
So glad beautiful Darcie is home with her beautiful family- sending you all my love xx
2026-01-04 19:18:09
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Kerry :
What an amazing family , darcie is surrounded by love and if that alone could take away her pain she would never have felt pain , such a cruel disease but I hope sharing darcies journey brings comfort to you xx
2026-01-04 19:15:17
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Lesley Mullally753 :
God keep you all in his care
2026-01-17 20:01:06
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Virginia :
Sending love and prayers
2026-01-04 19:56:45
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mamabear6689 :
I’ll say a prayer for you tonight 💓🌸
2026-01-04 19:27:07
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Narrinder :
God bless her x
2026-01-05 00:22:17
5
BeatriceMaria :
God bless her🙏😍
2026-01-04 21:37:32
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Nala & Friends :
Such a little warrior. I’m sure it’s makes her feel better snuggling with her dad 🩷
2026-01-04 19:14:11
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Erica :
Elliana & Darcie are special girls that hold a special place in my heart always & forever❤️🦋.. Darcie your in my prayers, prayers that you keep pulling through pre
2026-01-04 20:22:56
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youshould_be_embarrassed :
I’m so very sorry this is your journey. You and your family show incredible strength and courage every single day. You must both be just as tired as little Darcie. I wish there was something someone could do to help all of you xx
2026-01-04 19:19:34
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juleesherry :
Are the 2 of you able to work? You should start a GoFundMe page, I believe the 2 of you should be able to stay at home with her, time is so important. I personally would donate.
2026-01-05 02:50:09
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